tag:blogger.com,1999:blog-151811238595694978.post7413910324432351094..comments2024-02-29T14:57:16.851-05:00Comments on <big><big>Deans' stroke musings</big></big>: Stroke rehabilitation of curled toesoc1deanhttp://www.blogger.com/profile/02302555382262295577noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-151811238595694978.post-55337079294115868812022-08-06T02:05:43.908-04:002022-08-06T02:05:43.908-04:00The toe crest looks like someone just glued one to...The toe crest looks like someone just glued one to the AFO. The metatarsal bump was so long ago I don't remember. Your therapist if not incompetent should know this stuff. You doctor will know nothing.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-23514744690808656072022-08-01T19:47:51.207-04:002022-08-01T19:47:51.207-04:00Dean.....my toe curling just started recently (app...Dean.....my toe curling just started recently (appoximately 2.5 years post stroke) I have been doing PT and walking regularly cane-aided up to 1.25 -1.5 miles around the neighborhood. The curling is relatively new for me but some days is quite painful to the point that the end of my middle toes are rubbed raw and sometimes ny toe joints ache as if the bones are being compressed down into the joints. <br /> The question what exactly does a toe crest and metatarsal bump look like on the AFO ? I tried to google but just found ads for under toe pads to attach before putting on socks.<br /> Know you are busy but any help/info would be appreciated.<br />Thanks-<br />ConcreteTim ConcreteTimhttps://www.blogger.com/profile/01326594432406612932noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-48810767923834321762019-11-06T14:14:25.883-05:002019-11-06T14:14:25.883-05:00Had I stroke 7 mos ago. Was able to receive the cl...Had I stroke 7 mos ago. Was able to receive the clot buster TPA. Have been in therapy eversince my stroke. I have had right leg and rt. Arm weakness. Seems like curling toes has been a problem ever since about 3 month out. I have to be real careful especially when I first stand up. I have fallen 2 times from the curling toes. Thanks for sharing what has been helpful to others.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-4263809515004340532017-06-23T12:46:03.515-04:002017-06-23T12:46:03.515-04:00Amen to that! That's what I do. When I had my ...Amen to that! That's what I do. When I had my stoke in Afghanistan I was totally paralyzed on my left side. The Dr. Asked me what my goal was for my treatment at that facility. I'm gonna walk out of here. And I did! They only know what they have learned in a book. You have to keep the faith. It's not over until GOD says so. I waved at him as walked out of that facility. That was in 2013. <br />Alaina Broome SSG(Ret)Anonymoushttps://www.blogger.com/profile/00162497336360490972noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-32534654605674626032016-10-08T18:07:05.387-04:002016-10-08T18:07:05.387-04:00Recovery is slow but I'm still trying TENS, do...Recovery is slow but I'm still trying TENS, don't have the money or insurance for Botox. I've also heard about some kind of EMG electrical stimulation. Don't quite know what that is but I'll look it up. Nicole Greenehttps://www.blogger.com/profile/05130574438453350291noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-42956554958389792632016-04-01T09:29:52.287-04:002016-04-01T09:29:52.287-04:00How is recovery going? I'm 3.5 years post str...How is recovery going? I'm 3.5 years post stroke.<br />NewshamNewshhttps://www.blogger.com/profile/16631249601112463450noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-375882413560790542016-03-28T09:54:06.062-04:002016-03-28T09:54:06.062-04:00I had an AVM in 2001 along with a couple of stroke...I had an AVM in 2001 along with a couple of strokes and seizures. At one time I wasn't able to walk with my shoes and socks off because my toes would curl. They still curl but not as much. I bought a TENS machine but I haven't used it yet. Research says that there is a muscular imbalance with my toes. Just wish I knew how to fix it. I'll just keep praising the Lord. He knows the answer.Nicole Greenehttps://www.blogger.com/profile/05130574438453350291noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-9742143441010761412015-08-16T16:07:00.916-04:002015-08-16T16:07:00.916-04:00Hello Anonymous, I am an occupational therapist a...Hello Anonymous, I am an occupational therapist and believe that recovery can continue for years. It may be slow, and in the meantime you need to learn on compensate and adapt so you can participate in the activities that are meaningful to you. Dean has some good posts on this site regarding daily, lifestyle exercises. Keep on working therapeutic tasks and exercises into your daily routines. Never give up<br />Bonnyhttps://www.blogger.com/profile/14491205584394675840noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-43599597103019832022015-01-18T12:49:01.757-05:002015-01-18T12:49:01.757-05:00I have flaccid toes ankle 27 years ld and my PT ex...I have flaccid toes ankle 27 years ld and my PT expects them never to recover, but 3 years for you gives me hope.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-34987493884521970952015-01-18T10:31:35.622-05:002015-01-18T10:31:35.622-05:00Read the post it explains it. I think what occurre...Read the post it explains it. I think what occurred is that signals from the toe area were routed thru the underlying white matter dead brain area and took 3 years to accomplish that rerouting, and that was with no trying to move them on my part. oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-47352585831534487732015-01-18T09:58:13.156-05:002015-01-18T09:58:13.156-05:00Look I still dont have my left dominant hand or my...Look I still dont have my left dominant hand or my left foot working. im past 5 months. therapists suggest I accept a hemiplegic life, they have 20 years experience and nothing has been invented yet? I cant believe it im 27 only years old.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-49266618772584513052015-01-18T08:08:53.931-05:002015-01-18T08:08:53.931-05:00But you got your toes back so how? you knew it was...But you got your toes back so how? you knew it was live and you got motivated to exercise your toes ans=d then they started working?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-80273318920309630362015-01-17T17:41:07.672-05:002015-01-17T17:41:07.672-05:00From the original post. At the 3 year mark I was i...From the original post. At the 3 year mark I was in a research project and saw my fMRI scan. No one noticed the part that was alive. If you look at a motor homunculus you can see that the toe area is next to the corpus collusum and that seems far enough away from the rest of the damage to not be affected. My doctor knew nothing and told me nothing. Getting an fMRI scan will do you no good because your doctors and therapists do not map damaged areas to stroke rehab protocols. You are completely on your own as to figuring out how to recover.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-25586287846453525822015-01-17T17:21:21.586-05:002015-01-17T17:21:21.586-05:00So how did yu get an fMRI? nobody told me I could ...So how did yu get an fMRI? nobody told me I could get one. And how did they notice the part is alive before you could move the toes?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-66799616919135942692014-03-21T09:09:13.179-04:002014-03-21T09:09:13.179-04:00You have incompetent orthotists. If you can't ...You have incompetent orthotists. If you can't get an orthotist to put a built-in toe crest and metatarsal pad, I ended up buying on the internet these items, they worked pretty well, not quite as good as an orthotist built one. Snipping the tendons should only be done as a complete last resort. Find a new orthotist and before seeing them grill them on what they will do to guarantee straightening the toes.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-59756950114702722014-03-21T05:27:01.761-04:002014-03-21T05:27:01.761-04:00my mom is 15 yrs out of her stroke has had 3 afos ...my mom is 15 yrs out of her stroke has had 3 afos made we have had trouble getting the orthos to get the afo out under her toes now they are so twisted she is walking on the tops of them, actually most of the time she rolls around her house on a desk chair as she does not have room to use her wheelchair. The podiatrist is wanting to snip the tendons under her toes we are wondering how painful that would be and if it would really help, she is 85 and lives alone, paralyzed on the one side. The brain investigation is interesting, how did you get the signals to co-ordinate again?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-7717517133325562522013-10-04T09:31:09.443-04:002013-10-04T09:31:09.443-04:00I too have spasms of toe curling after a stroke. ...I too have spasms of toe curling after a stroke. I get regular botox shots in my leg which give some relief, but do not control the spasming. I have always had extremely high insteps (which I have recently been told is caused by tight foot tendons) and am wondering if this is a contributing factor. I would be interested to know if other suffers have naturally high insteps?Andreanoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-2247733225963409112013-03-25T23:41:08.492-04:002013-03-25T23:41:08.492-04:00My daughter is 9 years post and has claw toe with ...My daughter is 9 years post and has claw toe with the foot turning. None of her doctors know what to do. Thank you all for the advice.robertnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-7026752309150089202012-07-25T20:07:03.604-04:002012-07-25T20:07:03.604-04:00Botox did not do anything for my toes.Botox did not do anything for my toes.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-3431761463474721142012-07-25T16:08:17.538-04:002012-07-25T16:08:17.538-04:00The answer is Botox! Really worked very well for m...The answer is Botox! Really worked very well for me. It gives you a window of opportunity to work on your muscles without the spasticity.Tamarahttps://www.blogger.com/profile/07359000064787191210noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-70949952363011874472011-04-03T16:08:58.069-04:002011-04-03T16:08:58.069-04:00Sympathies to all who suffer this.I have had big t...Sympathies to all who suffer this.I have had big toenail operated om ( removed) 4 times as a result of my toe curling on stroke side& I am in agony again and desperate for the answer.Maybe tendons cut is next for megavin hagemanhttps://www.blogger.com/profile/04266897013941205350noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-48832009380142082032011-04-01T17:18:40.907-04:002011-04-01T17:18:40.907-04:00I am 18 months post stroke and I too have been hav...I am 18 months post stroke and I too have been having trouble with my toes scruntching up like a monkey. Today I had an appointment with a podiatrist because my right foot turns over and is very painful when it does, I thought if I could keep my foot from turning then maybe I could walk with my crutches a little better. Not only am I walking better with my crutches Im no longer scrunching my toes up. All thanks to a wedge on a inner sole, a podiatrist that listens, and a willingness to try something.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-37232251238978363702011-03-07T16:26:20.994-05:002011-03-07T16:26:20.994-05:00If you can't get an ortotist to put a built-i...If you can't get an ortotist to put a built-in toe crest and metatarsal pad, I ended up buying on the internet these items, they worked pretty well, not quite as good as an orthotist built one. I was lucky and had just rolled over to another fiscal year and got on a new HMO that didn't know that the AFO was only 1 year old - 3 years seems to be the expected longevity. But this is not a medical suggestion that can only come from your doctor. In my case I basically had to educate my doctor so he would write the prescription for the new AFO. This seems to be very common so start educating your doctor. But only if you ask your doctor for permission to educate them.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-42076554498555330582011-03-06T17:03:22.467-05:002011-03-06T17:03:22.467-05:00Have just found this post(& 1st time seen this...Have just found this post(& 1st time seen this blog,thank god!) thanku so much! Am 2&half years post stroke & toes are clawing & makes walking so difficult & painful at times(& distressing). Am currently trying to give myself dayly (at best) sessions of TENS but v slow progress - have noticed so far,(after 2 weeks) my foot dosent drag so much. (have fixed AFO/splint for getting about). Have been umming &ahing about botox & really dont fancy it....Glad to read about after 3 years your brain rerouted th signals. Msg i took from that is to have more patience & faith in my healing process. I'll try not pull my hair out so much & not give so much grief to my partnr!!San42noreply@blogger.comtag:blogger.com,1999:blog-151811238595694978.post-78110838464694452682011-03-05T14:11:28.858-05:002011-03-05T14:11:28.858-05:00Thanks, glad someone is getting helped from this.Thanks, glad someone is getting helped from this.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.com