National Stroke Association issue advocacy

I still get emails from them and this one pointing to the bills before the national legislature is good. Support these bills.
http://www.stroke.org/site/DocServer/DistMtgToolKit_IssueSummary.pdf?docID=9501&autologin=true

I however will not be supporting them directly. When I first attended one of their advocacy web meetings I asked the question,'How do I advocate for what the NSA works on?', no answer. So until they become survivor focused and driven by survivors I will not support them. Mr. Baranski, do you care to answer? I will publish any reply you provide.