And where the hell are the 2, 5, and 10 year followups for stroke?
Our stroke associations should have been doing this for the past 20 years.
http://online.liebertpub.com/doi/abs/10.1089/neu.2013.2997
Abstract
Introduction: The deleterious consequences of traumatic brain
injury (TBI) impair capacity to return to many avenues of premorbid
life. However, there has been limited longitudinal research examining
outcome beyond five years post-injury. The aim of this study was to
examine aspects of function, previously shown to be affected following
TBI, over a span of 10 years. Materials and Methods: One hundred and
forty one patients with TBI were assessed at two, five, and 10 years
post-injury using the Structured Outcome Questionnaire. Results: Fatigue
and balance problems were the most common neurological symptoms, with
reported rates decreasing only slightly over the 10-year period.
Mobility outcomes were good in over 75 percent, with few participants
requiring aids for mobility. Changes in cognitive, communication,
behavioral and emotional functions were reported by approximately 60% of
the sample at all time-points. Levels of independence in activities of
daily living were high over the 10-year period, and up to 70 percent
return to driving. Nevertheless, approximately 40% required more support
than before their injury. Only half of the sample returned to previous
leisure activities and less than half were employed at each assessment
time post-injury. Whilst marital status remained surprisingly stable
over time, approximately 30% reported difficulties in personal
relationships. Older age at injury did not substantially alter the
pattern of changes over time, except in employment. Conclusions:
Overall, problems that were evident at 2 years post-injury persisted
until 10 years post-injury. The importance of these findings is
discussed with reference to rehabilitation programs.
Keywords:
traumatic brain injury, functional outcome, structured outcome
questionnaire
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