We as survivors need to get completely involved in StrokeNet because if this is left up to researchers and doctors they will completely fail in following a strategic plan just like they've been failing for the past 40 years.
http://bringmethenews.com/2014/06/18/u-of-m-joins-national-stroke-research-project/
The idea behind StrokeNet is to allow institutions to share the
information and data they collect to speed up research and cut costs.
“The new system is intended to streamline stroke research, by
centralizing approval and review, lessening time and costs of clinical
trials, and assembling a comprehensive data sharing system,” says Dr.
Petra Kaufmann, associate director for clinical research at the National
Institute of Neurological Disorders and Stroke.
The NIH reports the 25 research centers are strategically placed in
every region of the country, and were selected because of demonstrated
experience in stroke research and recruitment, including the ability to
enroll underrepresented populations.
The University of Minnesota was selected because of its reputation of
academic excellence, dedication to research and advancement of medical
knowledge, the U reports.
More at link.
I would suggest contacting Dr.
Petra Kaufmann at NINDS to get involved.
Petra.kaufman@nih.gov
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