Understand the worldview of those you're trying to reach - Stroke associations

This line from Seth Godin pretty much encompasses everything that is wrong with most of our stroke associations. Most survivors have a disability they want to overcome and nothing useful is seen to be worked on to understand exactly how neurogenesis and neuroplasticity can be replicated on a consistent basis to get survivors to complete recovery.  Yet most communications from our stroke associations is about prevention. Tremendous mismatch there that they don't even recognize. Probably because they have no survivor advisory committee or any survivors in positions of authority. I blame the board of directors for not setting appropriate direction.