Dear Friend,
Like so many other stroke survivors, my stroke was unexpected and very personal. It has been a humbling experience to join National Stroke Association and be given the opportunity to give back to the stroke community.
I’d like to meet you and answer your questions. Join me on Dec. 17 at 10 a.m. MST for a video chat.
Your voice matters to me and I want to know what your needs are, how National Stroke Association can serve you better, and share with you my long-term vision to meet the growing needs of the stroke community.
I hope you’ll register for this exciting opportunity to chat live with me on Wednesday.
Sincerely,
Matt Lopez
CEO
P.S. - The video chat will be hosted on YouTube LIVE. You do not need a YouTube account or video equipment to participate.
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My comments in the question box. As author of Deans' Stroke Musings I have thousands of questions that need answering. But we'll stick with the major problems in stroke.
What are you/NSA doing to solve these?
0. There is no fast, easy and objective way to diagnose a stroke. Will the tricorder xPrize solve this?
1. tPA may save your life but with tPA having a 88% failure rate for full recovery, it's pretty lousy to depend on that.
2. Your neurologist doesn't have any concrete stroke protocols to save all the neurons that are dying in the first week. Neuronal cascade of death(5 causes).
3. Your neurologist or physiatrist doesn't have any clue about how to get you to full recovery. (Ask them exactly how to do it), you'll get excuses.
4. Only 10% get to full recovery..
5. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
6. Nothing to alleviate your fatigue.
7. Nothing that will cure your spasticity.
8. Nothing on cognitive training unless you find this yourself.
9. No published stroke protocols.
10. No way to compare your stroke hospital results vs. other stroke hospitals.
11. Excuses abound, the main one being the stupidity of 'All strokes are different, all stroke recoveries are different'.
Even if you can't go, sign up and pepper him with questions.
If you have a question you would like to ask Matt, please email it to events@stroke.org.
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