Expanding the Science of Patient Input: Building Smarter Patient Registries - Stroke

If our fucking failures of stroke associations wanted to do at least the minimal necessary to be considered a stroke association they would setup these patient registries for all hospitals treating stroke patients. But this won't occur because it is too godammed much work for our stroke associations to do. And their boards of directors are ok with allowing such failures.
http://www.fastercures.org/reports/view/55

Decision-makers in research, industry, policy and health-care settings are actively seeking robust sources of patient data to inform patient-centered practices, policies and outputs. Scientific rigor throughout this process is of paramount importance to ensure solid outcomes. This report, as a part of our Patients Count: The Science of Patient Input program, is aimed at establishing rigorous methods and reliable practices for understanding and incorporating patient needs into the process of developing, regulating and delivering new therapies.

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