Tuesday, June 14, 2016

Spasticity Alliance

With all these members they should easily be able to CURE spasticity, not just treat the symptoms. If they

don't tackle curing spasticity as a BHAG(Big Hairy Audacious Goal) 

Then they are completely fucking worthless.

Up to  43% of stroke survivors report spasticity. (655,000 *.43 = 281,650 a year)

50% of TBI patients develop spasticity. (1,700,000 *.5 = 850,000 a year)

78% of multiple sclerosis patients develop spasticity.  (400,000 *.78 = 312,000)

80% of cerebral palsy patients develop spasticity.  (10,000 * .80 = 8,000 babies a year)

78% of SCI, spinal cord injury patients develop spasticity. (259,000 *.78 = 202,020)

They don't give total numbers but  it is a lot.              Est. 1,653,670

http://spasticityalliance.org/
















The goal of the Spasticity Alliance is to:
  • Provide a clearinghouse of best-of-class patient educational tools and resources
  • Act as the go-to source for spasticity-related conditions
  • Increase awareness of spasticity
  • Address the onset of spasticity and its symptoms
  • Offer management options which can include a combination of medications and therapies
  • Empower patients and caregivers to discuss their symptoms with their healthcare professionals
  • Build a strong alliance of patient advocacy organizations to create a united voice for spasticity messaging, tools and resources.
  • Nope, a complete waste even setting this up, just thinking in microscopic terms.
  • Does no one ever talk to survivors or anyone with more knowledge of spasticity than whomever set this up?

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