Act Now: Urge Congress to Fund a National Parkinson’s Database

Our fucking failures of stroke associations can't even copy a successful non-profit showing them the way to get things done.
http://view.michaeljfox-email.org/?qs=8f4be07a572e75a90d37734d4c2ebedce513a723079145d9dda6eafbb4a8cc8813046909f60f2eefbbb651cb3ea4b462770559ddf518093432117248ae4e1a862fec1f4e48b10e67a6154ec0bc62584a

Urge Congress to Fund a National
Parkinson's Database

Currently, we do not have accurate and comprehensive information on how many people are living with Parkinson's disease, who they are and where they are located. Scientists need access to this information to further research and help bring new therapies to market.

In 2016, Congress passed legislation to create the National Neurological Conditions Surveillance System, designed to gather vital patient demographic information. This would allow scientists to better understand neurological diseases, including Parkinson's, and refine their research. However, the system was never funded and has not been implemented.

Congress is debating the Fiscal Year 2018 budget and has limited time to make spending decisions. Urge your lawmakers to provide this system with full funding and finally make it a reality.