So you acknowledge that stroke rehab at your hospitals are complete failures. What the fuck are you doing to fix that? Rather than just dumping recovery on the caregivers? Solve the correct problem, hospitals having no protocols to 100% recovery.
A web-based carepartner-integrated rehabilitation program for persons with stroke: study protocol for a pilot randomized controlled trial
- Sarah BlantonEmail authorView ORCID ID profile,
- Patricia C. Clark,
- Robert H. Lyles,
- George Cotsonis,
- Brian D. Jones,
- Aimee Reiss,
- Steven L. Wolf and
- Sandra Dunbar
Pilot and Feasibility Studies20195:58
© The Author(s). 2019
- Received: 20 November 2018
- Accepted: 4 April 2019
- Published: 25 April 2019
Abstract
Background
Family carepartner management
and support can improve stroke survivor recovery, yet research has
placed little emphasis on how to integrate families into the
rehabilitation process without increasing negative carepartner outcomes.
Our group has developed creative approaches for engaging family
carepartners in rehabilitation activities to improve physical and
psychosocial health for both the carepartner and stroke survivor. The
purpose of this study is to explore a novel, web-based intervention
(Carepartner and Constraint-Induced Therapy; CARE-CITE) designed to
facilitate positive carepartner involvement during a home-based
application of constraint-induced movement therapy (CIMT) for the upper
extremity.
Methods
The primary aim of the study
is to determine feasibility of CARE-CITE for both stroke survivors and
their carepartners. Carepartner mental health, family conflict
surrounding stroke recovery, and stroke survivor upper extremity
function will be evaluated using an evaluator blinded, two-group
experimental design (blocked randomization protocol according to a 2:1
randomization schema) with 32 intervention dyads and 16 control dyads
(who will receive CIMT without structured carepartner involvement).
CARE-CITE consists of online education modules for the carepartner to
review in parallel to the 30-h CIMT that the stroke survivor receives.
The intent of CARE-CITE is to enhance the home-based intervention of
CIMT, by helping the carepartner support the therapy and create a
therapeutic home environment encouraging practice of the weaker arm in
functional tasks.
Discussion
The CARE-CITE study is testing
the feasibility of a family-integrated rehabilitation approach applied
in the home environment, and results will provide the foundation for
larger clinical studies. The overall significance of this research plan
is to increase the understanding and further development of
interventions that may serve as models to promote family involvement in
the rehabilitation process.
Trial registration
ClinicalTrials.gov, NCT02703532. Registered 9 March 2016
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