Exploring patient perspectives of barriers and facilitators to participating in hospital-based stroke rehabilitation

 The biggest barrier to participation is the FACT that your stroke medical team KNOWS NOTHING ABOUT GETTING YOU 100% RECOVERED. You get guidelines and excuses: 'All strokes are different, all stroke recoveries are different.' With exact protocols, even if millions of reps were required survivors would gladly do the work.

Exploring patient perspectives of barriers and facilitators to participating in hospital-based stroke rehabilitation

Nicole Last , Tara L. Packham , Rebecca E. Gewurtz , Lori J. Letts & Jocelyn E. Harris

Received 10 Nov 2018, Accepted 23 Jan 2021, Published online: 11 Feb 2021

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• https://doi.org/10.1080/09638288.2021.1881830
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Abstract

Background

Patient participation is recognized as an important element of rehabilitation. However, few studies have used a qualitative lens to specifically examine factors influencing patient participation in stroke rehabilitation.

Aim

The purpose of this study was to investigate patient perspectives of barriers and facilitators to participating in hospital-based stroke rehabilitation.

Methods

Semi-structured interviews were conducted with 11 patients, with confirmed diagnoses of stroke, recruited from three separate rehabilitation settings. Analysis of the interviews was guided by a process of interpretive description to identify key barriers and facilitators to participation in stroke rehabilitation.

Results

Four main themes and corresponding sub-themes were constructed concerning participation in rehabilitation: (i) Environmental Factors, (ii) Components of Therapy, (iii) Physical and Emotional Well-Being, and (iv) Personal Motivators. An exploratory model of personalized rehabilitation emerged, integrating the themes emerging from the data.

Discussion

Personalized rehabilitation can be considered in comparison to person-centred care principles. The barriers and enablers experienced by patients in this study contribute to the existing knowledge of the patient experience of stroke rehabilitation and may be used to inform clinical practices and future research.

• Implications for Rehabilitation

• The surrounding environments can facilitate participation in rehabilitation using strategies to reduce noise and disruption and also by encouraging social interactions among patients.

• Increasing the frequency and consistency of communication with patients about rehabilitation goals and progress could enhance participation.

• Designing interventions to include activities that are meaningful and focused on the resumption of valued life roles is key to participation.

• Therapy intensity, time spent sedentary, and the emotional impact of stroke are aspects of rehabilitation patient’s feel are neglected.