Abstract
Objective
– To examine patient activation from the start of stroke rehabilitation and its course up until the 6 month follow-up.
Design
– Inception cohort study with a follow-up of 6 months.
Setting
– Multidisciplinary rehabilitation facility.
Participants
–
478 stroke patients who received inpatient or outpatient rehabilitation
with a median age of 63.0 years (inter quartile range (IQR) 56.0-70.0
years) with 308 (64.2%) being male. The study was completed by 439
(91.8%) patients.
Interventions
– Not applicable.
Main Outcome Measures
–
Patient activation was measured with the Patient Activation Measure
(PAM, score 0-100, 4 levels, where a higher score and level denotes more
patient activation). The PAM was measured at the start of the
rehabilitation (baseline), and 3 and 6 months thereafter, and analysed
using the multivariate mixed model analysis.
Results
–
At baseline, the mean PAM score was 60.2 (SD 14.3), with the number of
patients in PAM level 1, 2, 3 and 4 being 76 (17.8%), 85 (19.9%), 177
(41.4%) and 90 (21.0%), respectively. The multivariate mixed-model
analysis demonstrated that the PAM score increased over time (baseline
60.2 (Standard Deviation (SD) 14.3) versus 3 months 60.7 (SD 14.8)
versus 6 months 61.9 (SD 18.0), p 0.007). Between baseline and 6
months, 122 (41.4%) patients remained at the same PAM level, 105
(35.6%) patients increased, and 68 (23.1%) decreased. At all time
points, >35% of patients were in level 1 or 2.
Conclusion
–
PAM scores increased slightly over time from the start of
rehabilitation up to the 6 month follow-up. However, more than a third
of patients remained at low levels (i.e. level 1 and 2) of patient
activation, which indicates that specific interventions during
rehabilitation to increase patient activation might be of value.
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