If you present to the hospital with locked-in syndrome you better hope your doctors are sufficiently knowledgeable about it to recognize your consciousness inside. Or you'll have to wait on having this type of stroke until your medical staff knows how to treat it.
Methodological Recommendations for Studies on the Daily Life Implementation of Implantable Communication-Brain–Computer Interfaces for Individuals With Locked-in Syndrome
Abstract
Implantable
brain–computer interfaces (BCIs) promise to be a viable means to
restore communication in individuals with locked-in syndrome (LIS). In
2016, we presented the world-first fully implantable BCI system that
uses subdural electrocorticography electrodes to record brain signals
and a subcutaneous amplifier to transmit the signals to the outside
world, and that enabled an individual with LIS to communicate via a
tablet computer by selecting icons in spelling software. For future
clinical implementation of implantable communication-BCIs, however, much
work is still needed, for example, to validate these systems in daily
life settings with more participants, and to improve the speed of
communication. We believe the design and execution of future studies on
these and other topics may benefit from the experience we have gained.
Therefore, based on relevant literature and our own experiences, we here
provide an overview of procedures, as well as recommendations, for
recruitment, screening, inclusion, imaging, hospital admission,
implantation, training, and support of participants with LIS, for
studies on daily life implementation of implantable communication-BCIs.
With this article, we not only aim to inform the BCI community about
important topics of concern, but also hope to contribute to improved
methodological standardization of implantable BCI research.
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