YOU need to get involved and demand 100% recovery; otherwise they will do NOTHING towards that goal! Your choice, Do you want your children and grandchildren not to get fully recovered from their strokes? You want them to improve RECOVERY NOT 'CARE'!
NIHR update: changes ahead in 2024
NIHR update: changes ahead in 2024
In the 12 months since April 2023, more than 14,000 patients across the UK have
participated in 114 Stroke studies listed on the NIHR Clinical Research Network (CRN)
portifolio. This year there will be even more studies seeking evidence to improve prevention,
acute care, rehabilitation and wellbeing, but there are also some important changes ahead
in how the NIHR CRN is being organised to best support research across all of the 30 clinical
specialties that it recognises, including Stroke.
The headline news is that during the next 6 months, the UK CRN is going to evolve into the
UK Research Delivery Network (RDN) [Clinical Research Network | NIHR]. For England this
means that the existing 15 Local CRNs will become 12 Regional RDNs which fit into the 7
larger NHSE regions i.e. North East & Yorkshire, North West, Midlands, East, South West,
London and South East. Each one of these will have a Regional Lead appointed to assist the
National Lead with strategic development of research activity in their specialty, working
collaboratively with representatives from the 12 Regional RDNs. Adverts are expected to be
circulated soon for the 7 Regional Specialty Leads. The devolved nations will also continue to
be valued members of the UK RDN, and Stroke will retain its close links with BIASP and other
partners who already provide input into the planning of research generation and delivery.
As well as this structural change, there are plans to increase the capacity and capability of
the NHS to delivery clinical studies including: an emphasis on integration of research activity
into routine clinical care; greater multidisciplinary leadership of research delivery such as
the Associate PI scheme [Associate Principal Investigator Scheme (google.com)]; formal
recognition of research delivery expertise through university accredited training [Clinician
Researcher Credentials (google.com)]; and new approaches to access larger patient groups
including self-referral to studies [Be Part of Research (nihr.ac.uk)] and targeted invitations for
participation being sent out to individuals via their NHS records [NHS DigiTrials - NHS England
Digital]. The overall emphasis will be on using research support resources to make the
biggest differences where the need is greatest, which I hope means that Stroke will be
acknowledged for its associated large clinical, social and economic burden. In the meantime
it’s business as usual, and there are some really exciting new studies on the way to address
stroke prevention after cerebral haemorrhage (ASPIRING), vagal nerve stimulation to
promote upper limb recovery (TRICEPS), treatment of aspiration pneumonia (CLASP) and the
risk of stroke following TIA with migraine features (SMART), to name just a few.
Thank you as always to everyone who is supporting and leading research to improve the
lives of stroke patients and the delivery of services. The NIHR RDN strategy is work in
progress and more details will become clearer during the year, but there are opportunities
ahead to increase the creation of new evidence to inform routine patient care, especially for
specialties like Stroke where there is a strong tradition of multidisciplinary teamwork and
clinical academic collaboration.
Professor Chris Price
NIHR National Stroke Lead
In the 12 months since April 2023, more than 14,000 patients across the UK have
participated in 114 Stroke studies listed on the NIHR Clinical Research Network (CRN)
portifolio. This year there will be even more studies seeking evidence to improve prevention,
acute care, rehabilitation and wellbeing, but there are also some important changes ahead
in how the NIHR CRN is being organised to best support research across all of the 30 clinical
specialties that it recognises, including Stroke.
The headline news is that during the next 6 months, the UK CRN is going to evolve into the
UK Research Delivery Network (RDN) [Clinical Research Network | NIHR]. For England this
means that the existing 15 Local CRNs will become 12 Regional RDNs which fit into the 7
larger NHSE regions i.e. North East & Yorkshire, North West, Midlands, East, South West,
London and South East. Each one of these will have a Regional Lead appointed to assist the
National Lead with strategic development of research activity in their specialty, working
collaboratively with representatives from the 12 Regional RDNs. Adverts are expected to be
circulated soon for the 7 Regional Specialty Leads. The devolved nations will also continue to
be valued members of the UK RDN, and Stroke will retain its close links with BIASP and other
partners who already provide input into the planning of research generation and delivery.
As well as this structural change, there are plans to increase the capacity and capability of
the NHS to delivery clinical studies including: an emphasis on integration of research activity
into routine clinical care; greater multidisciplinary leadership of research delivery such as
the Associate PI scheme [Associate Principal Investigator Scheme (google.com)]; formal
recognition of research delivery expertise through university accredited training [Clinician
Researcher Credentials (google.com)]; and new approaches to access larger patient groups
including self-referral to studies [Be Part of Research (nihr.ac.uk)] and targeted invitations for
participation being sent out to individuals via their NHS records [NHS DigiTrials - NHS England
Digital]. The overall emphasis will be on using research support resources to make the
biggest differences where the need is greatest, which I hope means that Stroke will be
acknowledged for its associated large clinical, social and economic burden. In the meantime
it’s business as usual, and there are some really exciting new studies on the way to address
stroke prevention after cerebral haemorrhage (ASPIRING), vagal nerve stimulation to
promote upper limb recovery (TRICEPS), treatment of aspiration pneumonia (CLASP) and the
risk of stroke following TIA with migraine features (SMART), to name just a few.
Thank you as always to everyone who is supporting and leading research to improve the
lives of stroke patients and the delivery of services. The NIHR RDN strategy is work in
progress and more details will become clearer during the year, but there are opportunities
ahead to increase the creation of new evidence to inform routine patient care, especially for
specialties like Stroke where there is a strong tradition of multidisciplinary teamwork and
clinical academic collaboration.
Professor Chris Price
NIHR National Stroke Lead
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