Explain to them how useless your doctor is in treating post stroke fatigue, they've known about it for decades, yet have DONE NOTHING! Don't talk about your problems with fatigue, DEMAND TO KNOW WHO IS GOING TO SOLVE IT! NO EXCUSES!
The only way others can be helped by your testimony is if YOU tell them they need to CURE FATIGUE! No excuses.
Share your experience of post-stroke fatigue to help others
Different Strokes is looking to recruit volunteers for taking part in research in partnership with the Universities of Birmingham and Cambridge.
We are interested in hearing from both stroke survivors and family members/carers of stroke survivors.
This would involve being filmed talking about your experiences of post-stroke fatigue.
COMbAT (COproduction and evaluation of a self-MAnagemenT intervention
for post-stroke fatigue) is a self-management programme to help people
cope with fatigue following a stroke. (Wrong goal, Survivors don't want to 'cope'! They want recovery. Why aren't you delivering that?)
It is being developed by experts led by the Universities of Birmingham and Cambridge.
People affected by stroke have told us that hearing other people’s experiences of fatigue is extremely helpful. Therefore, we want to include videos of people telling their fatigue stories in our self-management programme.
We are looking for volunteers to be filmed talking about their experience of post-stroke fatigue, how it affected their life, and tips/ tricks to manage fatigue. The videos or audio clips will be included in the fatigue self-management programme to help others affected by fatigue.
With your help, we want to empower stroke survivors to better manage their fatigue, enabling them to engage in activities that bring joy, value and meaning to their lives.
Who can take part?
- Aged 18 years and over;
- Live in the UK;
- You feel tired all the time or get tired very quickly since your stroke;
- OR you are a family member/ carer of someone who has post-stroke fatigue.
What would taking part involve?
There are different ways to be involved:
- Film yourself on your phone or laptop answering questions;
- The team can film you during an online meeting (such as Zoom);
There will be some opportunities to be filmed in person if you prefer.
You will receive a £25 voucher for your contribution
Next Steps
To express an interest please click on the button below to complete the online form.
Once you submit this you will be contacted directly by a member of the COMbAT Fatigue research team by the end of August 2024.
The research has been funded by the National Institute for Health and Care Research (NIHR) and Stroke Association (Research ID: SA/NIHR 23\205012).
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