Why Patient Leaders With Certification Are Being Taken More Seriously
I've been writing about how to solve
stroke for 15 years. Never once in those years have I been contacted by
any stroke association or stroke medical 'professional'. It is precisely
as Amy Farber says: 'laboratory rat'.
We have to get past what Amy Farber had to say, For the past five years Amy Farber has been battling not only her own disease but also the wall
of resistance erected by those who believe that a patient can make about
as much of a meaningful contribution to the process of scientific
discovery as a laboratory rat. LAM, lymph-angiolio-myomatosis. She
co-invented a revoluntionary web service with MIT Media Lab that enables
patients to participate in the search for their own cures.
Very
obviously nothing I've done in the past 15 years has made a bit of
difference in stroke, but I'm persistent. Hell, I'm worth more than any
stroke association leader out there, they do nothing to solve stroke!
Contact me at oc1dean@gmail.com if you're willing to listen to a
survivor. Not sure I want to do this, I have a life to live since I'm retired.
Why Patient Leaders With Certification Are Being Taken More Seriously
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