Please join if you can. The inability to know why and how to treat survivor fatigue is criminally stupid. Getting more cardiovascularily fit is not the answer, if it was I would not be fatigued.
http://www.ucl.ac.uk/ion/departments/sobell/Research/NWard/researchprofile/ourresearch/neurofast?
They should know about all these, I've only got 27 posts on fatigue. Ask about their hypothesis, they better have one. These are my better ones that the researchers should already know about.
1. Physical factors associated with fatigue after stroke: An exploratory study. from 2012
2. Blink if your brain needs a rest fascinating idea here
3. Factors contributing to chronic fatigue after traumatic brain injury.
Where is the corresponding stroke study?
4. Insomnia, Fatigue, and Sleepiness in the First 2 Years After Traumatic Brain Injury
5. For the continuously sleepy, a new treatment shows promise
6. Prevalence and Predictors of 6-Month Fatigue in Patients With Ischemic Stroke
7. Cognitive basis proposed for fatigue after stroke
8. Fatigue and sleep disturbance following traumatic brain injury -- their nature, causes, and potential treatments
9. Does Your Brain Burn More Calories When You Think Hard?
10. Effects of Statins on Energy and Fatigue With Exertion: Results From a Randomized Controlled Trial
11. Tired neurons caught nodding off in sleep-deprived rats
12. Fatigue is a Brain-Derived Emotion that Regulates the Exercise Behavior to Ensure the Protection of Whole Body Homeostasis
13. Cognitive and graded activity training can alleviate persistent fatigue after stroke: a randomized, controlled trial.
14. Biological Coordinates of Post stroke Fatigue
15. Fatigue Manifestations and Strategies
16. Glycogen - fuel for the brain
17. Post-stroke fatigue: a treatment protocol that is being evaluated
18. REM sleep and stroke fatigue
I really wish someone would figure this out...its a HUGE problem for me and I've tried almost everything including: exercise, diet, sleep study, sleep hygiene, "skipping" naps aka "toughing it out/pushing myself to the extreme", medication trials, endocrinology/all blood work work up, etc. I've been doing accupuncture for 2weeks and its not helping yet either. I'm running out of ideas! Where are the experts?
ReplyDeleteThere are no experts. Medical staff can dismiss your concerns by simply suggesting that you get more exercise. Survivors know nothing according to your doctors, your medical staff is moribund in 30 year old ideas. Unless we overthrow all the stroke associations.
DeleteIts time for a revolution.