If you are a Canadian survivor contact them and ask to be involved in strategy setting and goals of the trials. Each trial should summarize the current state of the area of the clinical trial, what old research has been superceded, how survivors can use the information learned to recover. This is light years ahead of anything in the US and we supposedly have two stroke associations, the ASA and NSA.
http://www.canadianstroke.ca/en/news/building-capacity-for-stroke-clinical-trials-in-canada/
We are building capacity for
stroke clinical trials in Canada. Learn more about the efforts of
CaSTOR, an initiative of CPSR and the Canadian Stroke Consortium, by
reading our September newsletter: http://eepurl.com/cagPpT
The newsletter includes
information about a the first meeting of the newly created Clinical
Trial Coordinators network, the CPSR training program, the CSC’s
Knowledge Break, videos on the stem cells and stroke recovery, and more.
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