I haven't seen any calls for stroke survivor involvement in any stroke research. Until that occurs most stroke research is totally fucking useless. All primary measures should be set by survivors.
https://patientengagementhit.com/news/patient-engagement-low-in-patient-centered-research-protocol
Yes, there are SOME stroke trials, but a lot of them are rubbish, testing if physiotherapy works etc. There are very few trials with innovative treatments offered, and those that are seem to be located in the USA. I agree, if researchers asked stroke victims what they thought would be a good thing to trial, they would get some novel ideas that just MIGHT work
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