Deans' stroke musings: Global Experts Agree on Spatial Neglect Labeling

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, May 29, 2024

Global Experts Agree on Spatial Neglect Labeling

Well you fucking 'experts' aren't doing the correct research; SOLVING STROKE! Stroke survivors would like a cure, I really shouln't hope schadenfreude hits you damn hard after your stroke.

Global Experts Agree on Spatial Neglect Labeling

Kessler Foundation

East Hanover, NJ, May 29, 2024 — A consensus has been achieved by an international team of rehabilitation researchers and clinicians on the standardized labeling of spatial neglect, a common disorder following neurological injury, which is characterized by a lack of awareness or response to objects or stimuli on the side opposite a brain lesion. The panel reached a 75% consensus to adopt "spatial neglect" as the standard term for the disorder.

The consensus paper, titled "An International and Multidisciplinary Consensus on the Labeling of Spatial Neglect Using a Modified Delphi Method," doi: 10.1016/j.arrct.2024.100343) was published open access on May 4, 2024, in the Archives of Rehabilitation Research and Clinical Translation.

Spatial neglect, often experienced by survivors of stroke and traumatic brain injury, has been described using more than 200 different labels, leading to significant challenges in diagnosis, treatment, and research. Unifying the terminology across clinical and research settings will facilitate clearer communication among clinicians, patients, and families, streamline literature searches, and support the development of targeted interventions.

The team, led by Timothy J. Rich, PhD, OTR/L, research scientist in the Center for Stroke Rehabilitation Research at Kessler Foundation, employed a modified Delphi method. The Delphi method, a systematic and iterative survey process, involved 66 experts from diverse disciplines across five continents. Starting from a pool of 18 labels, panelists participated in four rounds of surveys, gradually refining their responses to reach a consensus.

"Standardizing how we describe spatial neglect is a critical step in enhancing both clinical practice and research," explained Dr. Rich. "Using uniform terminology ensures that we are all speaking the same language, which is vital for advancing our understanding and treatment of this complex disorder."

Peii Chen, PhD, from Kessler Foundation, the senior author who did not participate in the Delphi surveys because of her role in the project, added, "I hope researchers and clinicians will adopt 'spatial neglect' soon if they have not used this term previously, which will help the field to move beyond the debate about labeling."

Funding and Support: Wallerstein Foundation for Geriatric Life Improvement; NIH-NICHD grant number 1K01HD109446-01A1; Australian Government Research Training Program Scholarship.

Learn about the Foundation's ongoing studies in rehabilitation research at Join Our Research Studies | Kessler Foundation

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