Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:

Friday, September 24, 2010

obstacles to my stroke recovery - spasticity

Sometimes this is called tone, which sounds so benign.
I consider spasticity the largest reason I am having a hard time recovering. My bicep is firing most of the time so instead of my arm hanging straight by my side it is slightly bent. This causes my hand to bang into my crotch when I walk. Sometimes known as the 'dead brain look' Freehand reaching for something is almost impossible because my biceps tenses up preventing me from reaching forward. I'm not sure I have enough brain power to handle two things at once. Telling one set of muscles to relax while telling the opposing pair to extend. If I didn't have to control spasticity first I know I would be able to neuroplastcally move the actual movement to another location in my brain. I am not paralyzed enough to easily recover. If you really want to get irritated google William M. Landau and see what he thinks about the usefulness of spasticity.


  1. I agree- me too .Spasticity is an ARSE!

  2. It's a huge problem for me too! It's also very painful, especially in my left leg. In my case it's got a lot to do with anxiety. At home my walk is quite well, but when I get outside I almost freeze. I've read a lot of books by Louise Hay and Deepak Chopra, because the mind-body connection is so obvious in my case. Before my brain exploded I was sexy and felt good about myself, now I feel disabled and ugly, so I often choose to hide inside my home.

  3. Have you tried Botox? It worked very well for me in my clawing foot.

  4. Good information Dean. My stroke was in the same location as yours, except mine was hemorrhagic. My spasticity is extremely weather sensitive; cold or rain turns up the dial. During the worst of winter weather, my left shoulder joint and ribs feel like they are being pulled out of my body by my chest, shoulder and arm muscles, and I walk stiff-legged because of the rigidity of my quads and hamstring. Thankfully, though, when it gets warmer, the muscles relax to the point that I almost return to normal. Are you familiar with this phenomenon?

    1. Cold causes me to walk by swinging my leg like a log. If our stroke associations or therapists were any good they would be working on this. Alas, they aren't

    2. I have called that my peg-leg walk. Cold can cause it but also fatigue. I don't feel muscle fatigue like pre-stroke if I worked out. Instead, my signal of fatigue is when I subconsciously stiffen the muscles I'm attempting to use. I assume I am doing this due to paranoia the muscle is going to fail and I'll fall.