Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, July 4, 2019

Minority-Targeted Videos Flop for Stroke Readiness

Wrong focus. The focus needs to be on changing the status quo of

1. 30% get spasticity NOTHING THAT WILL CURE IT.

2. At least half of all stroke survivors experience fatigue Or is it 70%?

Or is it 40%?

NOTHING THAT WILL CURE IT.

3. Over half of stroke patients have attention problems.

NOTHING THAT WILL CURE IT.

4.  The incidence of constipation was 48%.

NO PROTOCOLS THAT WILL CURE IT.

5. No EXACT stroke protocols that address any of your muscle limitations.

6. Poststroke depression(33% chance)

NO PROTOCOLS THAT WILL ADDRESS IT. 

7.  Poststroke anxiety(20% chance) NO PROTOCOLS THAT WILL ADDRESS IT. 

8. Posttraumatic stress disorder(23% chance)  NO PROTOCOLS THAT WILL ADDRESS IT.

  912% tPA efficacy for full recovery NO ONE IS WORKING ON SOMETHING BETTER.

10.  10% seizures post stroke NO PROTOCOLS THAT WILL ADDRESS IT. 

11. 21% of patients had developed cachexia NO PROTOCOLS THAT WILL ADDRESS IT. 

 

12. You lost 5 cognitive years from your stroke  NO PROTOCOLS THAT WILL ADDRESS IT.

13.  33% dementia chance post-stroke from an Australian study?

       Or is it 17-66%?

       Or is it 20% chance in this research?

NO PROTOCOLS THAT WILL ADDRESS THIS

Minority-Targeted Videos Flop for Stroke Readiness

Subgroup analysis showed improvement in low-education group

  • by Staff Writer, MedPage Today
Stroke preparedness may not improve among black and Hispanic church attendees after watching culturally tailored stroke videos compared to those receiving conventional stroke education brochures, a cluster randomized clinical trial found.
Average proportion of Stroke Action Test (STAT) questions answered correctly was similar for the usual care and video intervention groups at baseline (58.35% vs 59.05%, P=0.83), at 6-month follow-up (61.12% vs 63.94%, P=0.40), and at 1-year follow-up (61.58% vs 64.38%, P=0.41).
However, subgroup analysis showed substantial benefit with the intervention among those who hadn't completed high school education, improving from 52.4% to 66.7% of the 21 questions answered correctly, reported Olajide Williams, MD, of Columbia University Medical Center in New York City, and colleagues in JAMA Neurology.
These findings reveal insufficiencies in culturally customized, short-length stroke videos and conventional stroke informational pamphlets for improving stroke preparedness of ethnic and racial minority cohorts, the researchers noted.
"More work is needed to address this important public health problem," the authors wrote, pointing to lower stroke recognition and 911 use among Hispanic and black people that leads to ethnic and racial disparities in thrombolytic use.
Previous studies have demonstrated that narrative communication improves stroke preparedness among Hispanic and black youth and lowers blood pressure among black participants with hypertension, they wrote.
The researchers randomized 13 Hispanic and black churches located in urban areas, resulting in 160 patients in the intervention arm and 151 in the usual care group who were at least age 34 who had stroke risk factors but no history of it. Study participants and the churches involved were compensated for participation. The cohort was 79.1% female, 48.9% Hispanic, and 51.1% non-Hispanic black. Mean age was 58.6 years.
For the intervention arm, the investigators created two 12-minute stroke films on stroke preparedness -- a telenovela-based one for Hispanics and a gospel music-based one for blacks -- using a professional director, professional actors, and a trans-disciplinary research team. The usual care group received informational pamphlets in Spanish and English.
Participants in the intervention group watched one screening of the stroke video at their church and took home a DVD they were asked to watch again and share with friends and family. The usual care group received three stroke brochures in their preferred language at a church health fair and were asked to share them with friends and family.
Limitations of the study included the size of the cohort, self-reported education status, and lack of a cost-effectiveness or cost analysis component.
"While these findings may have potential implications regarding the design of stroke preparedness interventions, confirmatory testing in future studies is required," the researchers concluded.
The study was supported by the National Institute of Neurological Disorders and Stroke of the National Institutes of Health.
Williams disclosed relationships with the National Institute of Neurological Disorders and Stroke of the National Institutes of Health.

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