Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, January 12, 2025

Failure of my medical team to get me cross country skiing

 While I can actually still do this one-handed, it really only works if I'm on a groomed trail because that is enough force to keep the left foot from drifting to the left because of my damned spasticity. Where I'm at in central Michigan there are no groomed trails so skiing here is really slow, so my left ski doesn't go flailing off the trail. And I have to wear my old AFO to keep my ankle from rolling.  None of my stroke medical 'professionals' ever asked what I did for recreation so they could solve the problems of getting back there. 

As another stroke survivor said: 'The whole point of stroke rehab is to get you to accept that you won't recover and just have to deal with your disabilities!'

This is why I consider everything in stroke is a complete fucking failure! NO one is trying to solve anything.  You're all screwed if you have a stroke!


Send me hate mail on this: oc1dean@gmail.com. I'll print your complete statement with your name and my response in my blog. Or are you afraid to engage with my stroke-addled mind? No excuses are allowed, leaders solve problems, you must not be a leader if you're preparing excuses for not getting patients 100% recovered! And what is your definition of competence in stroke? Swearing at me is allowed, I'll return the favor.

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