Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, October 8, 2010

Book reading list for stroke rehab

Because I was told nothing I started reading to figure out what I could do for my recovery. This is the list of books I read and my thoughts on their usefulness.

Here are the books I've read on neuroplasticity. These are the ones that should be required reading.
The mind and the Brain : neuroplasticity and the power of mental
force / Jeffrey M. Schwartz and Sharon Begley.
Train Your Mind, Change
Your Brain: How a New Science Reveals Our Extraordinary Potential to
Transform Ourselves by Sharon Begley
The brain that changes itself : stories of personal triumph from the frontiers of brain science / Norman Doidge.
Neurological rehabilitation Carr, Janet H.
Stronger After Stroke by Peter Levine The best book by far. This one is worth buying

This one is about neurogenesis which I think the future of stroke rehab will be based on.
John J. Ratey, MD, author of Spark: The Revolutionary New Science of Exercise and the Brain.

Phantoms in the brain : probing the mysteries of the human mind / V.S. Ramachandran, and Sandra Blak

My Stroke of Insight by Dr. Jill Taylor
Change in the Weather: Life After Stroke by Mark McEwen
Don't Leave Me This Way: Or When I Get Back on My Feet You'll Be Sorry by Julia Fox Garrison
Still Here : embracing aging, changing, and dying / Ram Dass ; edited by Mark Matousek and Marlene Roeder.
Brain, Heal Thyself: A Caregiver’s New Approach to Recovery from Stroke, Aneurysm, And Traumatic Brain Injuries Madonna Siles
These are all personal accounts , they are good for seeing what persistence does but can't be looked at for help in determining if their methods might work for you. This is because none of them has any specific diagnosis of what areas of the brain died and which areas were damaged so you can compare their damage to yours.
Teaching Me to Run by Tommye-K. Mayer. If you want to run again, this one gives her step-by-step approach and shows a good way to analyze how to approach rehab.
Other books at least partially about stroke that I found useful;
Hippocrates' shadow : secrets from the house of medicine / David H. Newman. Good for realizing that doctors do not know everything.
Stretching / Bob Anderson ; illustrated by Jean Anderson.
While I can't do most of these I try to adapt these to loosen my spastic muscles.
The Whartons' stretch book : featuring the breakthrough method of active-isolated stretching / Jim and Phil Wharton with Bev Browning. This is the better of the two stretching books.
Anatomy of Movement by Blandine Calais-Germain This one came recommended from my OT. It helps me visualize what muscles are being used for what movements and has some excellent diagrams
of walking.
A motor relearning programme for stroke by Carr, Janet H.
clinical science of neurological rehabilitation,Bruce H. Dobkin
Willard and Spackman's occupational therapy.
9th ed. / [edited by] Maureen E. Neistadt, Elizabeth Blesedell Crepeau
Got some additional inhibition techniques for spasticity from here. Rood technique
Gait Analysis: Normal and Pathological Function
by Jacquelin Perry, Bill Schoneberger
The body has a mind of its own : how body maps in your brain help you do (almost) everything better / Sandra Blakeslee and Matthew Blakeslee
Sensory re-education of the hand after stroke by Yekeutiel, Margaret
Hand Recovery after Stroke, Exercises and Results Measurements by Johannes G. Smits, Else Boone Smits, and Else C. Smits-Boone Only useful if you still have some movement.
Hand and brain by Wing, Alan M. not very useful
The healing art of qi gong : ancient wisdom from a modern master / Hong Liu, with Paul Perry.
The survivors club : the secrets and science that could save your life / Ben Sherwood. This one had a statement that in a disaster, 10% of the people became leaders, 80% followed, 10% did nothing/gave up. So the choice is up to you;Are you going to be in the top 10%? I am.
Deep Survival : Who Lives, Who Dies and Why by Laurence Gonzales.
Psychologists who study survival say that people who are rule followers don't do as well as those who are of independent mind and spirit. When a patient is told he has 6 months to live, he has two choices: accept the news and die, or rebel and live. People who survive cancer in the face of such a diagnosis are notorious. The medical staff observes that they are 'bad patients',unruly, troublesome. They don't follow directions. They question everything. They're annoying. They're survivors.
Make yourself into a 'bad patient'.

Faster, better, stronger : 10 proven secrets to a healthier body in 12 weeks / Eric Heiden, Massimo Testa, and DeAnne Musolf.
One-Handed in a Two-Handed World (Second Edition) (Spiral-bound) by Tommye-K. Mayer

The luck factor : changing your luck, changing your life, the four essential principles / Dr. Richard Wiseman
The talent code : greatness isn't born. It's grown. Here's how / Daniel Coyle.
Talent is overrated Colvin, Geoffrey
Outliers: The Story of Success by Malcolm Gladwell
These three can be applied to stroke rehab, they essentially say that innate talent doesn't exist, it is all just focused practice, just like our massed practice therapy.
Rapt Attention and the Focused Life
Winifred Gallagher
Brunnstrom S. Movement therapy in hemiplegia:
a neurophysiological approach.
Bobath B. Adult hemiplegia: evaluation and
treatment,


Clinical Neuromythology and Other Arguments and Essays, Pertinent and Impertinent
Second Edition
By: William Landau
( this one I will never buy, I will not support him due to his misguided ideas on spasticity )


And here are the general brain knowledge ones:
The Three-Pound Enigma
Author: Shannon Moffett
A user's guide to the brain : perception, attention, and the four theaters of the brain
by Ratey, John J.
The secret life of the grown-up brain : the surprising talents of the middle-aged mind / Barbara Strauch This one was great because it supports the idea that middle-aged brains actually work pretty well.
Phantoms in the brain : probing the mysteries of the human mind / V.S. Ramachandran, and Sandra Blak
Evolve your brain : the science of changing your mind
by Dispenza, Joe
Rewire your brain : think your way to a better life
by Arden, John B.,
The Man Who Mistook His Wife for a Hat, Oliver Sacks




Ones I would like to read:
.
Being wrong : adventures in the margin of error / Kathryn Schulz
Peeling the Onion: Reversing the Ravages of Stroke
Striking Back at Stroke: A Doctor-Patient Journal
Stroke Rehabilitation - Guidelines for Exercise and Training to Optimize Motor Skill by Janet H. Carr and Roberta B. Shepherd
Acupuncture for Stroke Rehabilitation: Three Decades of Information from China
Rehabilitation of Paralysis Due to Apoplexy by Pan Chang
Clinical Science of Neurologic Rehabilitation
by Bruce H. Dobkin
Stroke Rehabilitation: Guidelines for Exercise and Training to Optimize Motor Skill Carr J, Shepherd R. Edinburgh: Butterworth-Heinemann; 2003, softcover, 301 pp. illus, ISBN: 0-7506-4712-4,
Textbook of Neural Repair and Rehabilitation
Acupuncture for Stroke Rehabilitation- Three Decades of Information from China by Hoy Ping Yee Chan
Upper Motor Neurone Syndrome and Spasticity, Clinical Management and Neurophysiology
Michael P. Barnes & Garth R. Johnson Eds
The Creating Brain
Author: Nancy C. Andreasen
A Brief History of the Mind
Author: William H. Calvin
7 Steps to a Healthy Brain
Author: Paul Winner

1 comment:

  1. Wow Dean. That is one heck of a long reading list.

    I have had a hard time reading very much post stroke, so I am way behind in my reading! (grin) Reading has really gotten a lot better this summer so I am going to take your book recommendations seriously.

    I have one to add to your list.
    A Change of Plans; Women's Stories of Hemorrhagic Stroke. by Sharon Dale Stone (Sumack Press)
    It is well told interview based stories of 12 women of a variety of ages from a variety of countries.

    Linda
    http://leadingahealthylife.blogspot.com/

    ReplyDelete