Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, October 14, 2010

My abbreviated Background story 2

I fell down walking across the bedroom floor that morning, May 21, 2006. I called to my wife, Sarah asking for help to stand up. She was already on the phone dialing 911 and answering the questions, drug use, high blood pressure, diabetes, overweight, All were negative. The paramedics came and asked the same questions mainly because there was this healthy looking 50 year old lying on the floor with some stroke symptoms. I spent the next 4 weeks in HCMC - Hennepin County Medical Center. In the Emergency room I received tPA, the clot busting drug,within the hour. I did not get the immediate miracle so the doctor said I would have to settle for the slow miracle recovery. I had Physical, Occupational and Speech therapy while there.Deficits from the stroke were left side paralysis. Mental cognition, eyesight and speech were not affected. By the time I left the hospital I could walk with a 4 point cane and AFO - Ankle Foot Orthotic. This occurred the day after returning from a strenuous 6 day whitewater canoeing trip on the Dog River, Ontario(23 miles and dropping 1050 feet with a 1.5 mile portage around a 120 ft. waterfall) and driving for 12 hours to get home. So the timing was fortuitous that I was at home when it occurred, (This website contains a slide show of a small part of the photos from that trip; http://www.rapidsriders.net/gallery2/main.php and then click on Album Dog River 2006, I am in the red canoe, my partners were Alan Faust in the purple canoe and Brian Johnston in the yellow canoe). My doctor speculated that I probably had a weak spot in the carotid artery and it was just a fluke occurrence. A later doctor speculated that plaque lifted up and tore. I don't believe I hit or twisted my neck hard enough on the trip to cause the tear. Update from April, 2008. I just had an ultrasound done and the artery that tore is now totally blocked, so I don't have to worry about that particular section anymore. There are three other arteries feeding the brain so it still gets enough blood.
Check out my MRI pictures lower in the blog and ask your doctor to see yours, at least 1 week after the event.
I have become fanatical about learning about everything to do with stroke since there is no one in the world that seems to know very much about it. A lot of this is to not have new survivors have to go thru the same 3 year learning process as I did.

8 comments:

  1. Hi Dean, it sounds like your story and mine are somewhat similar; I too lost left-side function (from paralysis), and I also began my blog, rehabrevolution.blogspot.com to help create a comprehensive resource for other survivors to reference in case they wanted to know more (and really, who wouldn't?) I'm glad to see that you are so passionate about reaching out to others! Thanks!

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  2. Hey Dean,
    I also suffered a stroke, but at the ripe age of 16. I was very healthy, actually a competitive gymnast about to compete internationally the following year. Well it didn't happen after I suffered a stroke. The top neurologists couldn't tell me how it happened. I'm 35 now, and have learned to live with much of the residual effects - mainly weakness in the certain muscles of the left side, left toes curling up, foot drop, and spasticitiy in my arm and foot. All of the Dr's have told me that it's neurological damage so just I'd have to live with it. Well I have, but am still looking for more information, and alternative solutions (re-training the brain).....
    Anyways, I'm about to start reading your blogs, and am very interested to see what has helped you.
    It's a great idea and resource for other people like myself.
    Thanks!
    -Ryan

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    1. Ryan, email me directly, your doctors are woefully stupid.
      Dean

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  3. How do I find your direct e-mail?

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  4. Way down in the right column is a section called email me.
    Dean

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  5. Dean, as you apparently do, I encourage any stroke survivor who wants to get better to read everything about "neuroplasticity".

    NOTE: I also have a blog -- http://www.StrokeRevelations.com. And I, too, read a variety of blogs by stroke survivors. There are, as I suspect you well know, a variety of approaches to blogging about strokes, and much can be learned by paying attention.

    Thanks for your passion and engagement with the process of recovery and helping others do the same!

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  6. hi all I suffered a stroke on june 23rd 2013 at age 49. no speach or sight problems it took me about 3 weeks to get of thickineer in my liquids but i think it was my speach therapist being mean i have been doing PT & OT since the stroke and still cannot walk or move my left arm,hand,leg or foot i am thinking about trying a med called Neuroaid any advice would be appriciated thanks
    billy morgan
    gonzales , la
    tourmgt@cox.net

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    1. Read my 7 posts on it, right column, google peter levine stroke blog and in there search for neuroaid.
      http://recoverfromstroke.blogspot.com/2011/04/neuroaid-theives.html
      Its a scam.

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