Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label legislation. Show all posts
Showing posts with label legislation. Show all posts

Monday, February 18, 2019

17 Alzheimer's supplement manufacturers just received FDA warnings about 58 illegal below-standard products.

Totally useless since it doesn't directly name the products or companies. There are links that lead to the answers but very confusing. 

The supplements in the US have zero guarantee of purity or efficacy due to the fucking stupidity of the US Congress passing the Dietary Supplement Health and Education Act of 1994 (DSHEA).

 

17 Alzheimer's supplement manufacturers just received FDA warnings about 58 illegal below-standard products.

The U.S. Food and Drug Administration today posted 12 warning letters and 5 online advisory letters issued to foreign and domestic companies that are illegally selling more than 58 products, many that are sold as dietary supplements, which are unapproved new drugs and/or misbranded drugs that claim to prevent, treat or cure Alzheimer’s disease and a number of other serious diseases and health conditions.

These products, which are often sold on websites and social media platforms, have not been reviewed by the FDA and are not proven safe and effective to treat the diseases and health conditions they claim to treat. These products may be ineffective, unsafe and could prevent a person from seeking an appropriate diagnosis and treatment.

Article continued below...

Wednesday, December 19, 2018

BOLD Infrastructure for Alzheimer's Act passes Congress

According to this meme, no need for something like this for stroke. Don't you know stroke is treatable and since you have been treated for stroke you must be all better.

What a bald faced lie

This meme from a couple of years ago just proves how out of touch stroke leadership is. They all need to be removed from power.  

And since there are NO problems in stroke to solve we can fire all those stroke researchers and use that money to hire PAs for 10 million survivors a year.And so we don't need legislation to work on stroke. There are NO problems in stroke to solve. Leaderships tells me so and they are fucking liars.

BOLD Infrastructure for Alzheimer's Act passes Congress


Alzheimer’s is an urgent public health crisis impacting our nation’s health care infrastructure. Investing in a nationwide public health response to this crisis will improve quality of life for those living with the disease and their caregivers, and reduce associated costs for individuals and the government. The Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act (S. 2076/H.R. 4256) would combat this crisis and create an Alzheimer’s public health infrastructure to address Alzheimer’s.
Thank your members of Congress for passing this critical legislation.

Wednesday, May 3, 2017

Vanderbilt study finds natural chemical helps brain adapt to stress

More reason to have your doctor prescribe you marijuana. For all the stress and anxiety you are having because your doctor knows zilch about getting you 100% recovered. The least s/he can do is take care of your stress. What is your doctor and hospital doing to legalize marijuana? Medical marijuana is worthless because stupid legislators don't know how to write laws that allow use of marijuana based on research like this.
https://news.vanderbilt.edu/2017/03/28/vanderbilt-study-finds-natural-chemical-helps-brain-adapt-to-stress/amp/

A natural signaling molecule that activates cannabinoid receptors in the brain plays a critical role in stress-resilience — the ability to adapt to repeated and acute exposures to traumatic stress, according to researchers at Vanderbilt University Medical Center.
The findings in a mouse model could have broad implications for the potential treatment and prevention of mood and anxiety disorders, including major depression and post-traumatic stress disorder (PTSD), they reported this week in the journal Nature Communications.
“The study suggests that deficiencies in natural cannabinoids could result in a predisposition to developing PTSD and depression,” said Sachin Patel, M.D., Ph.D., director of the Division of Addiction Psychiatry and the paper’s corresponding author.

Sachin Patel, M.D., Ph.D.
“Boosting this signaling system could represent a new treatment approach for these stress-linked disorders,” he said.
Patel, the James G. Blakemore Professor of Psychiatry, received a Presidential Early Career Award for Scientists and Engineers last year for his pioneering studies of the endocannabinoid family of signaling molecules that activate the CB1 and CB2 cannabinoid receptors in the brain.
Tetrahydrocannabinol (THC), the active compound in marijuana, binds the CB1 receptor, which may explain why relief of tension and anxiety is the most common reason cited by people who use marijuana chronically.
Patel and his colleagues previously have found CB1 receptors in the amygdala, a key emotional hub in the brain involved in regulating anxiety and the fight-or-flight response. They also showed in animal models that anxiety increases when the CB1 receptor is blocked by a drug or its gene is deleted.
More recently they reported anxiety-like and depressive behaviors in genetically modified mice that had an impaired ability to produce 2-arachidonoylglycerol (2-AG), the most abundant endocannabinoid. When the supply of 2-AG was increased by blocking an enzyme that normally breaks it down, the behaviors were reversed.
In the current study, the researchers tested the effects of increasing or depleting the supply of 2-AG in the amygdala in two populations of mice: one previously determined to be susceptible to the adverse consequences of acute stress, and the other which exhibited stress-resilience.
Augmenting the 2-AG supply increased the proportion of stress-resilient mice overall and promoted resilience in mice that were previously susceptible to stress, whereas depleting 2-AG rendered previously stress-resilient mice susceptible to developing anxiety-like behaviors after exposure to acute stress.
Taken together, these results suggest that 2-AG signaling through the CB1 receptor in the amygdala promotes resilience to the adverse effects of acute traumatic stress exposure, and support previous findings in animal models and humans suggesting that 2-AG deficiency could contribute to development of stress-related psychiatric disorders.
Marijuana use is highly cited by patients with PTSD as a way to control symptoms. Similarly, the Vanderbilt researchers found that THC promoted stress-resilience in previously susceptible mice.
However, marijuana use in psychiatric disorders has obvious drawbacks including possible addiction and cognitive side effects, among others. The Vanderbilt study suggests that increasing production of natural cannabinoids may be an alternative strategy to harness the therapeutic potential of this signaling system.
If further research finds that some people with stress-related mood and anxiety disorders have low levels of 2-AG, replenishing the supply of this endocannabinoid could represent a novel treatment approach and might enable some of them to stop using marijuana, the researchers concluded.
First authors of the study were graduate student Rebecca Bluett and postdoctoral fellow Rita Báldi, Ph.D., in the Patel lab. Faculty co-authors were Danny Winder, Ph.D., Roger Colbran, Ph.D., and Lawrence Marnett, Ph.D.
The research was supported in part by National Institutes of Health grants MH106192, NS078291, MH100096 and MH107435, and by the Brain and Behavior Foundation.

Sunday, December 4, 2016

US House of Representatives passed the 21st Century Cures Act, supported by the NSA

You can compare NSA support to the blistering negative review by Elizabeth Warren. With the NSA not being able to create a stroke strategy I don't trust their ability to analyze a bill like this. And with no references to why the bill should be supported, the NSA support is worthless to me.
National Stroke Association

Dear dean,
iStock-496442732.jpg
Late Wednesday evening, the US House of Representatives passed the 21st Century Cures Act by an overwhelming and bipartisan vote of 392 to 26. During the 24-hours prior to the house vote, over 300 SAN advocates sent nearly 1,000 emails to elected officials across the country! Your voices were critical to ensure passage of this bill through the House of Representatives.
But we're not done yet!
We expect the Senate to vote on the 21st Century Cures Act sometime early next week. We'll update you as soon as that vote is schedule. In the meantime, if you haven't taken action on this bill yet, please take action here: http://advocate.stroke.org/B09yh8S. If you have already taken action, thank you and stay tuned!
Sincerely,
Mitchell Ronningen
Mitchell Ronningen, J.D.
Manager, Government Affairs
9707 E. Easter Lane, Suite B, Centennial, CO 80112
1-800-STROKES (787-6537)
National Stroke Association © 2016 All rights reserved.

Thursday, June 2, 2016

Dietary Supplement May Prevent and Reverse Damage to Aging Brain

Impossible to tell what is going on here, No idea what is truly in this. Only $38 to get the full PDF. Except for the fact that there is no way to know if this supplement actually contains the listed ingredients. All because of the stupidity of our Congress passing the Dietary Supplement Health and Education Act of 1994 (DSHEA): (DSHEA) defined dietary supplements as a category of food, which put them under different regulations than drugs. They are considered safe until proven otherwise. Caveat Emptor. 

Dietary Supplement May Prevent and Reverse Damage to Aging Brain



Summary: According to researchers, a complex dietary supplement has shows anti-aging properties that appear to prevent, and even reverse brain cell loss.
Source: McMaster University.
A dietary supplement containing a blend of thirty vitamins and minerals, all natural ingredients widely available in health food stores, has shown remarkable anti-aging properties that can prevent and even reverse massive brain cell loss, according to new research from McMaster University.
It’s a mixture scientists believe could someday slow the progress of catastrophic neurological diseases such as Alzheimer’s, ALS and Parkinson’s.
“The findings are dramatic,” says Jennifer Lemon, research associate in the Department of Biology and a lead author of the study. “Our hope is that this supplement could offset some very serious illnesses and ultimately improve quality of life.”
The formula, which contains common ingredients such as vitamins B, C and D, folic acid, green tea extract, cod liver oil and other nutraceuticals, was first designed by scientists in McMaster’s Department of Biology in 2000.
A series of studies published over the last decade and a half have shown its benefits in mice, in both normal mice and those specifically bred for such research because they age rapidly, experiencing dramatic declines in cognitive and motor function in a matter of months.
The mice used in this study had widespread loss of more than half of their brain cells, severely impacting multiple regions of the brain by one year of age, the human equivalent of severe Alzheimer’s disease.
The mice were fed the supplement on small pieces of bagel each day over the course of several months. Over time, researchers found that it completely eliminated the severe brain cell loss and abolished cognitive decline.
“The research suggests that there is tremendous potential with this supplement to help people who are suffering from some catastrophic neurological diseases,” says Lemon, who conducted the work with co-author Vadim Aksenov, a post-doctoral fellow in the Department of Biology at McMaster.
“We know this because mice experience the same basic cell mechanisms that contribute to neurodegeneration that humans do. All species, in fact. There is a commonality among us all.”
Image shows vitamin pills and fruits.
The formula, which contains common ingredients such as vitamins B, C and D, folic acid, green tea extract, cod liver oil and other nutraceuticals, was first designed by scientists in McMaster’s Department of Biology in 2000. NeuroscienceNews.com image is for illustrative purposes only.
In addition to looking at the major markers of aging, they also discovered that the mice on the supplements experienced enhancement in vision and most remarkably in the sense of smell–the loss of which is often associated with neurological disease–improved balance and motor activity.
The next step in the research is to test the supplement on humans, likely within the next two years, and target those who are dealing with neurodegenerative diseases.
About this Alzheimer’s disease research article
Funding: Funded by National Sciences and Engineering Research Council of Canada, Bruce Power and the CBRN Research and Technology Initiative.
Source: Michelle Donovan – McMaster University
Image Source: This NeuroscienceNews.com image is in the public domain.
Original Research: Abstract for “A multi-ingredient dietary supplement abolishes large-scale brain cell loss, improves sensory function, and prevents neuronal atrophy in aging mice” by J.A. Lemon, V. Aksenov, R. Samigullina, S. Aksenov, W.H. Rodgers, C.D. Rollo and D.R. Boreham in Environmental and Molecular Mutagenesis. Published online May 20 2026 doi:10.1002/em.22019



Thursday, May 19, 2016

Natural Standard Herb & Supplement Guide app is an evidence based reference

We have no idea what is in the supplements we buy. All because of the stupidity of our Congress passing the Dietary Supplement Health and Education Act of 1994 (DSHEA): (DSHEA) defined dietary supplements as a category of food, which put them under different regulations than drugs. They are considered safe until proven otherwise. Caveat Emptor.

What’s in Those Supplements?

But if you want to know what that supplement might be for if it actually contains the supplement listed on the label, continue reading.

Natural Standard Herb & Supplement Guide app is an evidence based reference

Herbal medicine — also called botanical medicine or phytomedicine — refers to using a plant’s seeds, berries, roots, leaves, bark, or flowers for medicinal purposes.
Lately, in part due to TV shows like Dr. Oz,  it’s becoming common practice among certain patient populations.
It’s uncommon for physicians to be very well versed in various herbal remedies, and this handbook attempts to help with this lack of knowledge.
Natural Standard Herb & Supplement Guide: An Evidence-Based Reference is an app developed by Elsevier that attempts to provide high-quality, up-to-date, information about herbs and other supplements.
The user interface is arranged into different tabs. One tab lists all herbs and supplements, with the rest working as bookmarks, history, and the about page. The app has a search function that is robust and important since there are over 400 herbs and supplements covered. Each entry is concise and the text is easy to read, including uses, dosage information, safety considerations, and interactions with drugs and other herbs and supplements. Loading times are long during the trial period of the app as it doesn’t allow data to be downloaded and each entry has to be accessed in real time.
Interestingly, we found that each entry also includes information on the evidence and Scientific Evidence Grades. This is excellent as it allows physicians to offer accurate advice for or against use of particular herbs. All herbs are included in a table and organized based on their evidence grade. Taking into consideration the large number of herbs, extra navigational features would be useful including sorting items per evidence grade or usage.

Thursday, August 13, 2015

Ohio's marijuana legalization ballot measure, explained

This would be so great for me. Instead of a 17 hour drive to Denver I could drive 2 hours to Ohio. I know there are a couple of groups in Michigan trying to get a referendum on the ballot for 2016 but I don't trust our state residents to do the right thing.
You'll have to convince your parents and grandparents to vote for full legalization because  medical marijuana never covers uses for stroke.
My reasons here;
My 13 reasons for marijuana use post-stroke. Don't follow me but I will figure out some way to get some after my next stroke.

Ohio's marijuana legalization ballot measure, explained

Sunday, June 28, 2015

Letters of Support for H.R. 6, the 21st Century Cures Act

Fucking hey! Our stroke associations can't even be bothered to show support for this legislation. It would seem to be right up their alley. Getting someone else to do the hard work of solving all the problems in stroke. But I should just calm down and accept that they will never do anything useful for survivors. I bet they don't even know about this legislation.
http://energycommerce.house.gov/letter/letters-support-hr-6-21st-century-cures-act

Monday, July 21, 2014

Can ecstasy treat the agony of PTSD?

If we can't even get marijuana off the Schedule I drug list because our legislators are stupid we'll never get this approved.

And since stroke can cause PTSD(23% chance) your doctor will never stick their head out for a non standard of care to help any stroke patient.

The latest here:

For almost 30 years, Rick Doblin has pushed the idea of using the drug MDMA, better known as ecstasy, in psychotherapy. The Multidisciplinary Association for Psychedelic Studies, which he founded, has funded two phase II trials of MDMA to treat post-traumatic stress disorder (PTSD), one with encouraging results, and is supporting several others. Doblin and some other scientists believe the drug may help PTSD patients relive their traumas with a therapist in a safe atmosphere without overwhelming emotions. Swiss neurobiologist Franz Vollenweider says Doblin has a political agenda and lacks the expertise or the money to organize a phase III study.


Sunday, July 20, 2014

Cannabidiol – a glimmer of hope for Alzheimer’s disease?

From the Neuroscience Research Australia (NeuRA)blog.  Since we have complete idiots in our legislative process this will take 100 years to become legal.

I will however prevent my dementia by these totally unapproved ways.
Dementia prevention 19 ways

Cannabidiol – a glimmer of hope for Alzheimer’s disease?
NeuRA blog

Saturday, July 19, 2014

Backers of medical marijuana in Florida seek to assuage concerns

More complete and total stupidity. Legalize it completely, otherwise stroke survivors will never be able to avail themselves of the benefits to recovery.
http://news.yahoo.com/backers-medical-marijuana-florida-seek-assuage-concerns-233958134.html

Why it should be legalized so survivors can benefit;
13 reasons to use it post-stroke.

You can read the full text of the amendment here:
It is very unlikely you would be able to get it for stroke.
Legislators need to stop trying to be medical doctors and do something they actually know about.

Florida Amendment 2 (2014), Full Text of Constitutional Changes

 

Thursday, June 26, 2014

H.R. 1098, the Traumatic Brain Injury Reauthorization (TBI) Act of 2013.

Stroke has nothing. There are 7 million survivors in the US, adding 500,000 every year. With that and friends/family, we are at least 50 million strong. That's enough to get some decent legislation if we had a great stroke association.  We have no useful stroke associations at all, unless you count press releases as useful.  Alzheimers has National Plan to Address Alzheimer’s Disease
The TBI one here:
https://www.govtrack.us/congress/bills/113/hr1098

Saturday, June 21, 2014

Medical marijuana: New York moves to legalize it, but advocates not thrilled

This is just f*cking stupid. There is no way stroke survivors can use this at all.  You'll have to get directly in their faces and ask what the hell they are going to do when their parents have a stroke. GAH!!! the total stupidity of legislators and Cuomo.
http://news.yahoo.com/medical-marijuana-york-moves-legalize-advocates-not-thrilled-172103678.html

All the reasons for it here:

Medical Marijuana and Stroke

Tuesday, June 17, 2014

New York Governor Steering Medical Marijuana Into the Box Canyon

The only way we as stroke survivors are going to be able to use this for our recovery is for it to become completely legal. Most if not all medical marijuana states don't have any uses for us. Minnesota and Michigan have completely stupid medical marijuana laws. Tell your f*cking legislators to get out of the way and legalize it for when their parents need this after their strokes.
http://www.huffingtonpost.com/russ-belville/new-york-governor-steerin_b_5501003.html

Reasons here:

Medical Marijuana and Stroke

Monday, November 4, 2013

Support Services for Stroke Survivors in Michigan

I'm sure this will get co-opted by the stroke associations which means the result will be worthless.
If the council does get set up I guess I will have to be an asshole and demand I get seated. 

Support Services for Stroke Survivors in Michigan


Dear dean,
Your state legislators are considering a bill that would create a council to develop a statewide plan to address the needs of Michiganians with acquired brain injuries. Since stroke is considered an acquired brain injury, this plan would help stroke survivors. Contact your legislators today and urge them to support SB 617!

My addition to the message sent to legislators.
Create this council so it has a majority of survivors on it. The stroke medical world only gets 10% to full recovery so the existing medical protocols have failed. Don't allow the medical world to implement the existing failures.