Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, November 5, 2010

restructure stroke rehab model

My other thoughts on what needs to be done is restructure the way stroke information is provided. Currently it goes to the medical professionals in the hope that they will give it to the survivors and caregivers. That model is obviously not working as evidenced by the numerous stroke forums out there and all the unanswered questions being asked. Like the breakfast saying for bacon and eggs - the chicken is involved but the pig is committed. The medical staff is involved but the survivor is comitted. By changing the focus to the survivor, the survivor will make sure that the medical teams know what the possibilities for rehabilitation are out there and force the medical staff to keep up. On a similar vein there needs to be an accounting of all the various stroke rehab options out there and see what their efficacy is so we can decide what we want to try. As far as research is concerned, there should be a 10-20 year longitudinal study following the survivors seeing what works and what doesn't, very boring research but we need facts. In 2400 years we have not come very far as this Hippocrates saying demostrates. Hippocratic dictum that ‘It is impossible to cure a severe attack of apoplexy and difficult to cure a mild one’ .

Once again I am trying for an impossible task, it will just take a little longer to accomplish.

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