Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, December 8, 2021

Government denies services for stroke patients have been cut; Jersey, Channel Islands, UK

 YOU  have to change the National Clinical Guidelines for rehabilitation to 100% recovery for stroke. The government and the hospital will not do that. YOU HAVE TO GET IT DONE! You have to change the discussion to 100% recovery, nothing less. The hospital prefers to discuss the status quo, which is a complete failure and YOU have to challenge them on their fucking failures. Here are your discussion points; don't let them off the hook.

1. Your doctor knows nothing about stroke rehab as evidenced by the prescriptions written to OT, PT, ST of E.T.(Evaluate and Treat.)

2. Only 10% of patients get to full recovery.

3. No protocols to prevent your 33% dementia chance post-stroke from an Australian study.
4. Nothing to alleviate your fatigue.
5. Nothing that will cure your spasticity.
6. Nothing on cognitive training unless you find this yourself.
7. No published stroke protocols.
8. No way to compare your stroke hospital results vs. other stroke hospitals.

 

Government denies services for stroke patients have been cut; Jersey, Channel Islands, UK

 

REHABILITATION services for stroke patients and trauma sufferers ‘have not been reduced’, despite the closure of Samarès Ward, the government has said in response to an online petition.

Overdale Hospital. Picture: JON GUEGAN. (32199793)
Overdale Hospital. Picture: JON GUEGAN. (32199793)

The petition by Jean Lelliott, which has been signed by more than 1,400 Islanders since it was launched at the end of August, called for the new hospital to have the same equipment and specialist staff that used to be based at the ‘world-class’ facility at Overdale.

The ward had 28 beds for people needing physical rehabilitation, but last year the Health Department closed the ward and opened 12 beds in Plémont Ward at the Hospital with shorter stays provided.

A response to the petition was only released by ministers 94 days after it garnered the 1,000 signatures required, following a query by the JEP as to why it had been left so long without a response.

In a statement, the government said: ‘Rehabilitation services have not been reduced but are being delivered in different settings and in a number of different ways in line with National Clinical Guidelines for rehabilitation.’

However, St John Constable Andy Jehan has raised concerns over the state of rehabilitation services in the Island and said: ‘It is not good enough.’

Mr Jehan said he had personal experience of the changes to rehabilitation services, witnessing in recent months first-hand the problems people faced. And he had been contacted by numerous Islanders, including healthcare professionals, former patients and family members of patients.

He said that one healthcare professional had told him that a rehabilitation centre was ‘vital’, and labelled the current situation a ‘disgrace’.

Mr Jehan added that there were patients going for days without physiotherapy treatment and he was aware of patients in care homes who had been told that they would not see an occupational therapist for three months, which he labelled ‘terrible’.

The Constable said his comments were not aimed at Islanders on the front line, ‘who are working incredibly hard every day in very difficult circumstances’.

It s understood that moving the rehabilitation services to the General Hospital would result in there being around 28 fewer beds for other types of pstients, which one medic said could cause problems if services were out under pressure.

The government said: ‘Samarès Ward was close to many people’s hearts in the care and treatment that was provided.

‘HCS recognises that this has made some people anxious about the changes that are currently occurring. It acknowledges that Samarès Ward was a spacious, calm, healing environment where patients each had their own room. However, HCS is committed to improving Plémont Ward’s environment to ensure a better experience for patients.’

Mrs Lelliott’s petition said that the space for patients had been reduced by more than half, and that this was not in line with National Clinical Guidelines for stroke rehabilitation.

She said: ‘It is clear that 12 beds are obviously not enough, and we desperately need a fully functioning rehabilitation unit, as we had before in Samarès Ward, in our new hospital. Samarès was world class.’

In its response, the government said that the number of beds required for acute inpatient rehabilitation would be accommodated in the proposed new hospital at Overdale.

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