Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label UK. Show all posts
Showing posts with label UK. Show all posts

Monday, March 23, 2026

A guide to eating well after a stroke

 The Stroke Association of the UK is trying but massively failing at DIET PROTOCOLS, still just guidelines!

This is what your diet protocol should cover.

For dementia prevention; for cognitive improvement; for cholesterol reduction; for plaque removal; for Parkinsons prevention; for inflammation reduction, for dementia prevention; etc. Oh, you DON'T HAVE A DIET PROTOCOL, DO YOU? Incompetence of both the hospital and doctor! Haven't you fired both yet?

A guide to eating well after a stroke


Resource type
Information leaflet
Publication type
Stroke information

Did you know that the food you eat can affect your chances of having a stroke? Certain foods can help protect you against stroke, but having too much fat and salt in your diet can increase your risk. This guide explains how and why what you eat affects your risk of stroke and suggests some simple ways you can make your diet healthier.

Accessible formats

Document publication and review dates

Publication date
Next review date

Tuesday, December 2, 2025

The Stroke Association releases new Christmas campaign film with celebrities including Brian Cox, Alison Steadman and Nish Kumar

Big fucking whoopee.

An 'awareness' campaign; NOT A PLAN FOR 100% RECOVERY! You need to replace every member of this Stroke association with stroke survivors. Another stroke association proves it's a founding member of one of the fucking failures of stroke associations DOING NOTHING TO GET SURVIVORS 100% RECOVERED! 

The Stroke Association releases new Christmas campaign film with celebrities including Brian Cox, Alison Steadman and Nish Kumar

The Stroke Association has released its first ever Christmas campaign film, ‘Still Christmas’, to raise awareness of the devastation stroke can cause and the vital need for support this festive season.

This Christmas Day in the UK, another 240 people will wake up to the life-changing impact of a stroke. A stroke can leave survivors unable to move, see, speak, or even swallow, and can also lead to personality changes and depression.

The charity’s powerful new film features a poignant script delivered by high-profile supporters Brian Cox, Alison Steadman, Nish Kumar, Amanda Abbington, Nadia Sawalha, Christopher Chung, Jo Brand and Kiell Smith-Bynoe, intercut with Christmas home videos and photos shared by stroke survivors and their families.

The film is set to a new and contemporary cover of ‘White Christmas’, released by Universal and Irving Berlin’s estate, produced by Stream Media Group and directed by Stuart Hackshaw.

For the first time it puts the camera inside the homes of stroke survivors, at a time of year we can take fun and family for granted, illustrating not just the devastating reality of facing Christmas after a stroke, but also the hope that follows, as together they rebuild their lives and find strength through support.

The film will air on Channel 4 on 19 November 2025 and will be available to view online at stroke.org.uk/stillchristmas

To accompany the film, the Stroke Association also surveyed 1,000 stroke survivors about their experiences at Christmas, to understand the impact of stroke at this time of year. The research revealed that almost a third of stroke survivors (30%) feel like they are a burden to their family and friends at Christmas time1.

The study also found that almost half of stroke survivors (46%) said they now feel negatively about Christmas time due to the impacts of their stroke. Of those survivors who had experienced Christmas following their stroke2, two thirds (66%) feel frustrated about not being able to do things at Christmas that they could before they had their stroke.

The survey found that, of those people who had experienced a Christmas following their stroke, almost a third (28%) couldn’t cook Christmas dinner, and more than a quarter (26%) couldn’t visit friends and family or leave the house. Almost a quarter of stroke survivors (23%) couldn’t decorate the Christmas tree, while around a fifth (19%) couldn’t play with their children or grandchildren.

Juliet Bouverie OBE, CEO of the Stroke Association, said: “So many of us associate Christmas time with joy, being together with family and friends, and enjoying much loved traditions. But for another 85,000 people in the UK, this year will be their first Christmas after a stroke, and those things we all take for granted are no longer the same. However, with strength, determination and the right support, recovery is possible. That’s why we’ve created our powerful new film, to highlight the devastation stroke can cause, but remind people that we are here for them.

“Stroke support is crucial at any time of year for stroke survivors and their loved ones. We’re encouraging everyone to give the gift of stroke support this Christmas, whether as a donation, volunteering your time or fundraising, so that we can help more survivors and their loved ones find their strength and their way back to life after a stroke.”

The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. This Christmas, join us in raising awareness of the devastating impact of stroke and help the Stroke Association to support more stroke survivors at every step of their recovery. 

Give the gift of stroke support this Christmas – visit stroke.org.uk/stillchristmas  

Thursday, November 27, 2025

I’m no longer an NHSE director but I’ve not finished trying to improve care

 Well, I consider you a complete failure since you are talking 'care' NOT RECOVERY! I have never heard any survivor ask for 'care'?  They all want full recovery, unless you've bamboozled them with your tyranny of low expectations! Leaders tackle the hard problems under their preview, you are obviously NOT a leader!

I’m no longer an NHSE director but I’ve not finished trying to improve care

Thrombectomy transforms stroke recovery, yet limited access and regional gaps mean many UK patients still miss this vital, disability-preventing treatment, writes Professor Sir Steve Powis

Every day in the UK, 240 people of all ages have a stroke. It is the UK’s fourth leading cause of death and, as the country’s leading cause of complex adult disability, it can also leave survivors with difficulties walking, speaking, seeing, or swallowing, as well as poor mental health.

In 2009, the first thrombectomy was carried out in the UK, and for a decade, there has been national guidance supporting its implementation. It is one of the most effective treatments in modern medicine and, by removing the blood clot which caused the stroke, is a brain-saving treatment which can be performed within minutes. It has revolutionised emergency stroke treatment, giving thousands of stroke survivors the chance to leave the hospital walking instead of in a wheelchair.

Yet only 4.4 per cent of eligible patients in England, Wales, and Northern Ireland had a thrombectomy last year – by way of comparison, the NHS England target is 10 per cent. The 4.4 per cent average also masks huge regional variation – in the East of England, only 1.1 per cent of patients had a thrombectomy, but in London, 10.3 per cent of stroke patients had this treatment.

Twenty-four neuroscience centres provide thrombectomy across England, and another two thrombectomy centres should be up and running in the next year. But only 15 out of these 24 centres currently offer 24/7 access to thrombectomy, and many other centres don’t treat every eligible patient, either. Acute stroke treatment and thrombectomy are incredibly time-sensitive, most effective within six hours of onset of stroke.

While some patients could have treatment outside of this window, it’s likely to be much less effective. So, if someone has a stroke in the evening or at the weekend in some parts of the country, they may miss the opportunity to have a thrombectomy and therefore live with life-changing consequences.

Wednesday, October 29, 2025

New findings show recovery support is more vital than ever

Notice that this stroke association from the UK has support phone numbers for survivors. The ASA has none, The WSO has none. Because neither of them are for survivors. We don't have a great stroke association but lots of fucking failures of stroke associations!

 New findings show recovery support is more vital than ever

Wednesday, July 2, 2025

Ombudsman stroke complaints increase – June 2025 UK Stroke Association

 You'll have to get involved in the stroke section(10 Year Health Plan) and DEMAND 100% RECOVERY PROTOCOLS! Your stroke medical 'professionals' will try to dumb down that goal, DO NOT LET THEM!

Ombudsman stroke complaints increase – June 2025

Juliet Bouverie OBE, CEO of the Stroke Association, said:

“These findings are deeply concerning as they highlight the difficulties faced by the overstretched NHS workforce when battling against a broken system. The findings also reflect our own experiences supporting stroke survivors, as well as patient survey data collated with the NHS, which found room for improvement too. Whilst dedicated stroke professionals provide compassionate care(NOT RECOVERY!), without urgent investment and action, stroke patients will continue to face unacceptable variations in treatment and support.

“Prior to a scan, stroke can be difficult to diagnose depending on which part of the brain is affected, so symptoms can vary between patients. However, stroke is always a medical emergency as prompt treatment can save lives and minimise long-term disability. We have always supported the NHS’s FAST campaign to raise awareness amongst the public and professionals of the most common symptoms of stroke – facial drooping, arm weakness, and slurred speech. Today’s findings are a stark reminder that more work needs to be done to improve awareness.

“The Stroke Association frequently speaks out about how avoidable failures mean stroke survivors suffer from poor long-term health and disability. Huge challenges including spiraling ambulance delays, long waits for specialist stroke treatment and a lack of specialist teams all come at a time when more people of all ages are having strokes. The 10 Year Health Plan cannot come soon enough to tackle these issues which are costing both the survival and quality of life for stroke patients. We’re also calling for a wider cardiovascular plan, with a focus on stroke, to ensure stroke survivors have the best chance of making a good recovery.(NOT GOOD ENOUGH! Survivors want 100% recovery; why are you pushing your tyranny of low expectations on them?)

Friday, June 13, 2025

Stroke Association reacts to the latest ambulance response times

 Since you're never going to get to tPA delivery in 3 minutes. WHAT ARE YOUR EXACT PLANS FOR 100% RECOVERY?

In this research in mice the needed time frame for tPA delivery is 3 minutes for full recovery. What is your plan to accomplish that? Or are you ignoring that need?

Electrical 'storms' and 'flash floods' drown the brain after a stroke

The latest here:

Stroke Association reacts to the latest ambulance response times  

NHS figures for May, which are out today, show that the average response time for category 2 calls, which includes stroke, was 27 minutes and 54 seconds. This is up from 27 minutes and 34 seconds in April. This is against the national target of an average response time of 30 minutes for Category 2 calls which was set by the Government and NHS for 2025/26. This had previously been set at 18 minutes but was repeatedly missed. This 30-minute target was also backed up in last week’s Urgent and Emergency Care Plan.

In the UK, someone has a stroke every five minutes. Stroke is a medical emergency and, as 1.9 million brain cells die every minute after stroke hits, timely medical assistance is vital to minimise the disabilities stroke survivors may be left with. The main treatments for stroke – thrombectomy and thrombolysis – are also most effective within hours of the onset of stroke.

Juliet Bouverie, CEO of the Stroke Association, said: “This month’s data confirms that far too many patients are being left with no option but to watch the time tick by as they wait for life-saving treatment. Stroke must be treated as a medical emergency, so it is unacceptable to keep people waiting when time is so critical for the effective treatment of stroke.

“These delays are largely due to a lack of consistent funding and the resources needed for the dedicated workforce to be able to do their jobs effectively. We hope the cash injection announced in yesterday’s Spending Review can go towards speeding up these response times and ensuring people with stroke get help as soon as they need it from diagnosis to treatment and recovery.”

In response to yesterday’s Spending Review, Juliet Bouverie added:

“The spending review brought welcome news of increased funding for the NHS at a time when it is so desperately needed. Stroke is a leading cause of adult disability and the fourth leading cause of death in the UK. People affected by stroke are all too often plagued by the well-documented issues facing the NHS from ambulance delays to workforce capacity, and this can’t continue.

“We have long been calling for simple but effective measures to properly care for stroke patients whilst also ensuring the right financial decisions are made. Lifesaving thrombectomy could save £73 million a year if rolled out 24/7 nationally by reducing disability of stroke survivors. Expanding technologies like pre-hospital video triage could improve diagnosis and treatment times, reduce unnecessary hospital admissions and minimise costly delays in care.

“At a time when the health service faces so many challenges, we hope this injection of cash will be invested into stroke care to stop two thirds of stroke survivors being left with a disability. To achieve this, we want to see a wider cardiovascular disease plan that includes a focus on stroke to follow the publication of the upcoming 10 Year Health Plan.”

ENDS

For more information, contact: Jude Clay, PR Manager at the Stroke Association - jude.clay@stroke.org.uk

Notes to Editors

About the Stroke Association

  • Over 90,000 people survive a stroke every year in the UK, but surviving a stroke is just the start of a long and gruelling recovery journey.
  • Mums, dads, grandparents, young people, even children – anyone can have a stroke, and its impact is traumatic. 
  • Brain damage, caused by a stroke, can leave survivors unable to move, see, speak or even swallow.   
  • The Stroke Association is the only charity in the UK providing life-long support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year, fund vital scientific research, and campaign to secure the best care for everyone affected by stroke.
  • Anyone affected by stroke can visit stroke.org.uk or call our dedicated Stroke Support Helpline on 0303 3033 100 for information, guidance or a chat when times are tough. 

Friday, March 21, 2025

What ICBs can do about the growing challenge of stroke - UK

 It's damn simple! You create 100% recovery protocols, and you can't see that? Everyone in stroke must be a blithering idiot with no understanding of how to solve stroke! And she's the chief executive! Heaven help us poor stroke survivors! 

What ICBs can do about the growing challenge of stroke 

By Juliet Bouverie OBE, Chief Executive of the Stroke Association 
21 March 2025



Someone in the UK has a stroke every five minutes. By 2035, the number of people having a stroke is set to increase by 60% and, as a result, the number of stroke survivors in the UK is expected to almost double to 2.1 million. While stroke is the fourth leading cause of death in the UK and advances in treatment and care have seen survival rates increase, it is still a leading cause of adult disability. 

The huge burden of stroke is both understood and recognised and is why cardiovascular disease(WOW! No knowledge that Stroke has been called neurological disease by the WHO since 2006!)

 prevention remains a key Government ambition for 2025/26 – even within their slimmed down set of priorities. But prevention alone isn’t enough. Reducing the number of strokes is critical but we must also prioritise ensuring every stroke patient can rehabilitate and recover well, as this is one of the biggest drivers of long-term health and social care costs today. 

It is predicted that, by 2035, the societal costs of stroke to the Government will be £75 billion – an increase of 194% over 20 years. Our ageing population means that stroke is a demographic timebomb as, by 2035, two-thirds of adults over 65 are expected to live with multiple health conditions including stroke – with younger populations also increasingly at risk of stroke. That’s why ICB leaders need to prioritise stroke as a key and fundamental component of integrated care strategies – it’s very clear that the financial, health and workforce benefits make stroke a high-return investment. 

Last autumn, the Stroke Association engaged with over 350 stroke survivors, professionals, researchers, and senior NHS leaders across England to ask them about their top priorities for stroke to help shape the Government’s 10 Year Health Plan. This valuable insight has formed the basis of the Stroke Association’s latest report – Unlocking potential – a bold vision for stroke care in England, launched in Parliament. The event was supported by NHS England’s Medical Director Stephen Powis and MPs including Uma Kumaran, whose husband had a stroke last year.

The report’s recommendations closely align with the shifts expected in the 10 Year Health Plan for England of sickness to prevention, better use of technology and moving care from hospitals to communities. It highlights prehospital video triage (PVT) as an example of how the NHS can use innovation and technology to better support diagnosis and treatment of stroke. At a time when ambulance services and emergency departments are severely stretched, technology which eases that strain is to be welcomed.

PVT connects ambulance teams on the scene with hospital-based stroke specialists via a video call to assess a patient’s condition and rapidly make a diagnosis of stroke or other conditions that mimic stroke. With severe staff shortages across the stroke pathway , this makes the best use of both generalist and specialist professionals’ skills and time. Patients can be conveyed to the nearest stroke centre and tests to confirm stroke, including CT scans, can be expedited on arrival so that patients are diagnosed quickly and get rapid access to specialist treatment and care in a stroke unit. 

Multiple pilots funded by NHS England in areas including East Kent, London and the Midlands have shown that PVT is an effective intervention to speed up access to brain saving treatments and reduce unnecessary conveyance to hospital. When only people with a high likelihood of stroke are taken to stroke units, capacity is freed up to treat those who need it most. That means time-sensitive treatments, including thrombectomy and thrombolysis, can be administered faster to enable more stroke survivors to leave hospital on their feet instead of in a wheelchair.

This adds up in every way. Each thrombectomy saves the healthcare system £47,000 per patient over five years. In contrast, the cost of thrombolysis not being administered is high – for every 2,000 patients who do not receive thrombolysis, the NHS incurs £8.2 million in avoidable costs over five years. Not only does this make simple financial sense, but such treatments also reduce demand for recovery services and ensure the stroke patient has a better chance of living independently.  

The human cost has to be considered too. Phil had a stroke on a Sunday – which meant he couldn’t have a thrombectomy as the service wasn’t available in his area on a weekend. Phil needed six months’ rehabilitation in hospital, an additional four months off work and he still lives with the various complex physical and mental side-effects today.  

Yet such innovations are all too often entrenched in geographical inequality as swathes of the country are not yet consistently delivering evidence-based stroke care and so exacerbating health inequalities. Thrombectomy is one of the most effective treatments in modern medicine and should be available to all. In addition, interventions such as PVT, need to be supported to become the norm, not the exception, regardless of postcode.  

PVT is just one way in which regional stroke teams have demonstrated pockets of innovation to support better patient care. There are others including virtual rehabilitation and digitally enhanced post-stroke support to allow recovery at home; and Early Supported Discharge (ESD) to reduce the length of hospital stays and support independent living.  

Significant gaps remain in rehabilitation and long-term support for the thousands of stroke survivors who are left unable to work or live independently. ESD should provide stroke survivors with the same quality and quantity of rehabilitation they would receive in hospital but within their own home. Yet in 2023/24, only 55% of stroke patients received this. In addition, there’s huge regional disparities – in Greater Manchester 83% of patients received ESD, but in Kent and Medway only 36% did. 

Without urgent action on stroke, the Government target to reduce stroke and cardiovascular deaths by 25% by 2035 will not be met. Whilst there is no denying that stroke is one of the NHS’s biggest challenges, it is also one of its greatest opportunities. By investing now in stroke prevention, treatment, and rehabilitation, ICBs can reduce pressure on acute services, maximise budgets, and – most importantly – save lives and improve recoveries and quality of life for tens of thousands of stroke survivors.  

Monday, December 30, 2024

In-Hospital Stroke Care Provision Has Not Improved Enough Over The Last 10 Years, Says The Stroke Association - UK

 

This is the whole problem in stroke enumerated in one word; 'care' NOT RECOVERY!

YOU have to get involved and chance this failure mindset of 'care' to 100% RECOVERY! Survivors want RECOVERY, NOT 'CARE'!

In-Hospital Stroke Care Provision Has Not Improved Enough Over The Last 10 Years, Says The Stroke Association

Thousands of stroke patients are missing out on lifechanging treatment and support as vital elements of in-hospital stroke care(NOT RECOVERY!) have declined over the last decade amidst increased waiting times, warns the Stroke Association.

Despite promising progress in some vital areas and the dedication of an overstretched workforce, the current healthcare ecosystem doesn’t appropriately support the 90,000 people who survive stroke every year to recover and live well afterwards.

The latest figures from the Sentinel Stroke National Audit Programme (SSNAP) reveal how both innovative treatments, such as thrombectomy, and basic care(NOT RECOVERY!), such as hospital rehabilitation, are still being delivered inconsistently throughout the country.

SSNAP data found some basics in acute stroke care(NOT RECOVERY!) are now worse than they were 10 years ago. The number of people directly admitted to a specialist stroke unit within four hours of arrival at hospital stood at 46.7% in 2023/24 but 54.9% in 2019/20 before the pandemic and 58% in 2013/14. This time spent waiting dramatically increases the risk of stroke survivors facing long-term poor health and disabilities.

In addition, the number of patients spending more than 90% of their time on a specialist stroke unit when admitted to hospital has decreased in the last five years from 83.2% in 2019/20 to 75.9% in 2023/24 – which represents a drop of more than 4,400 patients. This specialist support is key to helping reduce mortality within the first 30 days and optimising stroke recovery.

There has been an increase in people receiving integrated community-based rehabilitation, which is the preferred option for patients, and a key factor in NHS reform. However, the amount of time being spent delivering occupational therapy, physiotherapy and speech and language therapy has notably decreased over the last five years. Compounded by cuts to life-after-stroke support services, these types of care(NOT RECOVERY!) are vital to ensure stroke survivors can thrive throughout their recovery and beyond.
Although there have been significant improvements in moving patient rehabilitation from the acute sector and into the community, such support is still falling well below the 2023 National Institute for Health and Care Excellence (NICE) guidelines.

The SSNAP data also comes alongside the latest figures from NHS England which reveal that ambulance response times for Category 2 calls, which includes stroke, increased to 42 minutes and 15 seconds in October from 36 minutes and 2 seconds in September. This is above the 30-minute target set out in the NHS England Urgent and Emergency Care Plan and at a time when the NHS experienced more pressure in October than ever before on record.

This is contributing to how people affected by stroke are taking longer to arrive at hospital from onset – the average time has increased by almost a third to nearly 250 minutes since 2013/14. Speedy treatment of stroke is crucial as 1.9 million brain cells die every minute that a stroke is left untreated, increasing the risk of serious long-term disability and even death.

Although the stroke community has improved the use of thrombectomy treatment – from less than 1% in 2015/16 when such data was first collated – SSNAP data shows that 3.9% of stroke patients had a thrombectomy last year. With NHS England’s target at 10% by 2027/28, this is still falling behind and there are continued regional disparities.

Similarly, thrombolysis, a clot-busting drug, is underused. Around 20% of stroke patients are eligible for the treatment but only an average of 11.6% patients received the treatment in 2023/24 against the NHS England target of 20% by 2025 to achieve the best performance in Europe. There has been little or no variation over the last 10 years, but a sharp decline at the height of the pandemic.

The Stroke Association is calling on the Government for the 10 Year Health Plan to:
• Invest in stroke prevention, such as regular blood pressure checks, so many of the 100,000 strokes which happen every year can be prevented.
• Support the delivery of universal 24/7 access to an acute stroke unit and stroke treatments, such as thrombectomy and thrombolysis
• Support in-hospital and community rehabilitation services so that stroke survivors can live well after stroke.

Juliet Bouverie OBE, Chief Executive of the Stroke Association, said: “Despite a dedicated workforce with expert knowledge on how to help and support stroke survivors to make their fullest recoveries, the NHS stroke pathway has long been at crisis point. The recoveries of too many stroke survivors are being put at risk due to a lack of staff, spiraling waiting times and a lack of basic stroke care(NOT RECOVERY!) provision which compromises – rather than optimises – patient recovery.”

“Patients have been battling what feels like a permacrisis in our healthcare which has been blighting NHS care(NOT RECOVERY!) for long enough – governmental change is long overdue, and the 10 Year Health Plan is an ideal opportunity to ensure everyone who has a stroke can survive and live well.”

Wednesday, November 20, 2024

CSP responds to RCOG and Stroke Association call for better access to rehab - UK

 WRONG, WRONG, WRONG! Survivors want recovery you blithering idiots, not 'access'! Does no one in the stroke medical world have two functioning neurons to rub together for a spark of intelligence? This is why survivors need to be in charge, even with damaged brains we know more about what survivors need than these idiots!

CSP responds to RCOG and Stroke Association call for better access to rehab

Two reports published this week highlight issues with accessing rehabilitation and specialist services, echoing our calls for long-term, ring-fenced funding.http://Thumbnail

The Royal College of Obstetricians and Gynaecologists (RCOG) has published a report stating that waiting times for gynaecology services have increased across the UK, with more than three quarters of a million women now waiting for treatment for non-cancer related conditions. 

At the same time, the Stroke Association has published latest figures from the Sentinel Stroke National Audit Programme (SSNAP) which covers England, Wales and Northern Ireland highlighting that fundamental aspects of acute stroke care have deteriorated compared to a decade ago. It points to health inequality created by inconsistent access to rehab across different regions.

Both reports echo CSP calls for protected funding for community services as part of the government’s ten-year plan to transform the NHS. The RCOG specifically references the need for specialist support, such as pelvic health physiotherapy, to help women waiting for care to manage their symptoms. 

The Stroke Association is calling for greater investment for in-hospital and community rehabilitation services. The CSP underscored the urgency of stroke rehab staffing across acute and community sectors being expanded to meet current NICE recommendations.

Sara Hazzard, CSP assistant director and co-chair of the Community Rehabilitation Alliance (CRA), said: 

It’s striking to see both of these reports released on the same day, each shining a light on the hundreds of thousands of people who are denied the care and support they need to live their lives to the fullest.

The latest SSNAP report shows a rise in people receiving integrated community-based rehabilitation, which is a step forward. 

'However, the more troubling trend is the significant decline allocated to essential therapies, including physiotherapy, over the past five years. Teams are typically seeing patients for 35 minutes of physiotherapy a day, falling short of the target of 45 minutes per day for those that need it. This reduction is a stark setback for patient care.'

Dr Kate Lough, chair of the Pelvic Obstetric and Gynaecology Physiotherapy (POGP) professional network, echoes the CSP call for protected long-term funding: 

Recent reports have highlighted the importance of connected and multidisciplinary care. It is key that women’s needs are identified and met by services that are available and these are prioritised for funding.

 Long term commitment will enable optimal service provision including developing appropriate resources that are accessible and cost-effective. 

'Physiotherapy training and postgraduate experience needs to include earlier access to skills development in key rehabilitation areas to ensure that workforce gaps in the NHS do not compromise healthcare.'

It is important that governments in all four UK countries fulfil policy commitments and act on these issues highlighted in both reports. Physiotherapy is essential to delivering the government’s ambitions to shift from ‘sickness to prevention’. 

Monday, November 18, 2024

Declining standards of care for stroke patients must be reversed, says charity - UK

 Wrong focus. Survivors don't care about 'care'! They want 100% recovery. Where is it? You'll have to put survivors in charge of this charity(Stroke Association) and get the correct objectives for it.

Declining standards of care for stroke patients must be reversed, says charity

Figures from audit of England, Wales and Northern Ireland show some basic care now worse than decade ago

Sun 17 Nov 2024 19.01 EST

Ministers are being urged to improve declining care(NOT RECOVERY!) for stroke patients to lower the risk of death and disability as new figures show rising cases, especially among people in their 50s.

Thousands of stroke patients are missing out on appropriate treatment and rehabilitation, the standards of which have worsened over the past decade, the Stroke Association has said as it publishes the latest figures from the Sentinel Stroke National Audit Programme (SSNAP), the nation’s biggest stroke data audit covering England, Wales and Northern Ireland.

Separate NHS England analysis paints a picture of a healthcare system under increasing strain, as the number of people being admitted to hospital after a stroke has risen by 28% in the last 20 years. This included a 55% rise in admissions among people aged 50-59, bringing the number to 12,533 in 2023-24 – the highest increase among any age group. The rise is understood to be fuelled by obesity, poor diet and sedentary lifestyles.

The Stroke Association said that innovative treatments, such as thrombectomy, and basic care(NOT RECOVERY!), such as hospital rehabilitation, are still being delivered inconsistently across different regions.

Juliet Bouverie, the chief executive of the Stroke Association, said: “The NHS stroke pathway has long been at crisis point. The recoveries of too many stroke survivors are being put at risk due to a lack of staff, spiralling waiting times and a lack of basic stroke care(NOT RECOVERY!) provision which compromises – rather than optimises – patient recovery.

“Governmental change is long overdue, and the 10-year health plan is an ideal opportunity to ensure everyone who has a stroke can survive and live well.”

SSNAP data found that some basics in acute stroke care(NOT RECOVERY!) are now worse than they were 10 years ago. The percentage of people directly admitted to a specialist stroke unit within four hours of arrival at hospital stood at 46.7% in 2023-24, compared with 58% in 2013-14. Extra time spent waiting dramatically increases the risk of long-term poor health and disabilities.

The percentage of patients spending more than 90% of their time on a specialist stroke unit when admitted to hospital has decreased in the last five years from 83.2% in 2019-20 to 75.9% in 2023-24, a drop of more than 4,400 patients.

The latest figures from NHS England reveal that ambulance response times for category 2 calls, which includes stroke, have increased to 42 minutes and 15 seconds in October from 36 minutes and 2 seconds in September, meaning they arrive later at hospital, causing 1.9m brain cells to die every minute that a stroke is left untreated.

SSNAP data also shows that 3.9% of stroke patients had a thrombectomy last year, well below NHS England’s target of 10% by 2027-28. Although about 20% of stroke patients are eligible for thrombolysis, a treatment to dissolve blood clots, only an average of 11.6% patients received it in 2023-24.

The Stroke Association is calling on the government to invest in stroke prevention, such as regular blood pressure checks; support the delivery of universal 24/7 access to an acute stroke unit and stroke treatments such as thrombectomy and thrombolysis; and provide more funding for in-hospital and community rehabilitation services.

Eight years ago Phil Woodford, 53, from Preston, had a transient ischaemic attack (TIA) – a type of mini stroke – and full stroke the next day. He was given thrombolysis, but he was unable to have a thrombectomy because his local hospital did not provide the service on a weekend, which he believes may have ruined his quality of life.

He said: “My life changed overnight. It took four months’ rehabilitation in hospital and then another four months until I could return to work. My stroke caused musculoskeletal problems, permanent pain and weight gain because I’m less mobile now. I walk with a limp and my left arm sometime moves on its own and suffers from spasticity and cramps.”

A Department of Health and Social Care spokesperson said: “It is unacceptable that so many stroke survivors are not receiving the support and care(NOT RECOVERY!) they need with their recovery. We are committed to improving stroke prevention, treatment and recovery for all stroke survivors.

“We have introduced health checks in workplaces and blood pressure checks on high streets to help catch illness earlier, and we’re also acting to prevent strokes in the first place by tackling the biggest killers such as smoking and obesity.

“We will deliver the investment and reform needed to turn the NHS around, which includes shifting the focus of healthcare from treatment to prevention, as part of our 10-year health plan.

Monday, August 26, 2024

Stroke patients could face 'four-hour round trip' UK

 Which means YOU have to demand a plan B; 100% recovery protocols regardless of time since stroke. YOUR RESPONSIBILITY; your government and stroke medical 'professionals' will not do one damn thing. So it is all up to you to get plan B accomplished!

Stroke patients could face 'four-hour round trip'

An MP said patients in his constituency could face "major difficulties" if proposed changes to stroke care services go ahead.

Sir John Whittingdale, the MP for Maldon, said proposals to close St Peter's Hospital in the town and move beds to Brentwood could leave his constituents facing long journeys to access rehabilitation.

The plans could also leave stroke survivors in south Essex needing to travel to Brentwood, which the patient group Healthwatch Southend said would be a four-hour round trip on public transport.

Dr Matt Sweeting, executive medical director of NHS Mid and South Essex, said he and his team were reviewing all the feedback received during a recent public consultation.

The two options offered during the consultation included running a 50-bed stroke rehabilitation unit in Brentwood which would serve the whole of mid and south Essex.

The second involved a smaller ward in Brentwood alongside a centre in Rochford.

Kate Bradbrook/BBC Sir John WhittingdaleKate Bradbrook/BBC
Sir John Whittingdale said he planned to meet a government minister to discuss the proposed closure of St Peter's Hospital

Sir John said people living in villages like Southminster and Tillingham, who already drive about 30 minutes to Maldon, could be among the hardest hit.

"If people then have to travel to Brentwood instead, you're looking at double that amount of time and that's if people have cars, but a lot of people rely on public transport," he said.

Conservative MP Sir John previously debated the closure of St Peter's Hospital in Parliament and is due to meet local NHS leaders and the Department of Health and Social Care with Witham MP Dame Priti Patel.

Owen Richards, chief officer at Healthwatch Southend, said he was unable to support either of the proposed options.

"Getting to Brentwood from Southend is far from easy if you use public transport," he said.

"One of our volunteers tested the journey, which took two hours each way and could have cost up to £28."

Four out of five respondents rejected both options with objections including concerns about extra travel time and costs for patients, families, and carers.

There was marginally more support from Southend residents for the second option.

Dr Sweeting said: "While no decisions have been made at this stage, I want to reassure people that our priority is to ensure that any changes we consider are in the best interests of all patients."

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Thursday, August 1, 2024

Take Up Stroke report from Benjamin Jaa Ming New covering the changes stroke medicine has undergone since the 2019 BASP workforce challenges is now available:

Absolutely appalling that nothing in here references what survivors want: 100% RECOVERY!

Until we get survivors in charge that goal of survivors will never be addressed!

Take Up Stroke report from Benjamin Jaa Ming New covering the changes stroke medicine has undergone since the 2019 BASP workforce challenges is now available:

TUSF Report June 2024 – Benjamin Jaa Ming New (Stroke SpR and PhD student) Stroke medicine in the United Kingdom has undergone many changes since the 2019 BASP workforce challenges report. [1] In Scotland, it remains a leading cause of death and disability, and an ongoing focus for improvement by the Scottish government. The Stroke Improvement Plan 2023 sets out goals to enhance primary prevention, expand life-saving treatment, and a renewed emphasis on providing holistic rehabilitation services to individuals who suffered from stroke.(NOT 100% RECOVERY!) [2] At Ninewells Hospital in Dundee, we have recruited more Stroke specialist to the team since the 2019 report, reorganised our hyper-acute stroke services, and introduced a thrombectomy service hub which covers the North of Scotland in line with the improvement plan. I would like to use this opportunity to share the collective sentiments and challenges faced by the Ninewells Stroke team from this region. Ninewells Hospital is attached to the University of Dundee medical school, where our stroke clinicians have regular contributions to education and training, from medical students to higher speciality trainees. Instead of a few separate days of stroke pathology lectures, medical students now have access to a week of lectures, covering a range of topics from the basics and to an introduction in thrombectomy. Stroke medicine is also well recognised as unit with opportunities to engage with medical research and practice, with medical students returning for quality improvement projects in student selected components, as well as a top choice for foundation assistantships. Higher speciality trainees from geriatrics, neurology, acute medicine, and clinical pharmacology also rotate through stroke medicine from within their dual-training programme. This integrates well with the new training curriculum for Stroke medicine with only an additional 6-month fellowship for some trainees to gain an additional certificate of completion of training. While Stroke medicine has improved its accessibility to undergraduate and trainees, it does not alter the reality that it remains a demanding and complicated practice of medicine. Our familiarity with alteplase and improvements in neurovascular imaging using CT angiograms, perfusions, and MRI have not only extended thrombolysis time, but also made decisions around relative contraindications more challenging. Thrombectomy has not only transformed patient lives, but also introduced “teething pains” into busy NHS services across stroke medicine, radiology, and emergency services. Improved treatment and mortalities in stroke have saved lives but created more demands in both in-patient and out-patient rehabilitation services. While older and unexposed clinicians hold a fatalistic view of stroke, the younger clinicians are set in a struggle to keep up with patients/family expectations from advancements in stroke therapeutics. Our health board continues to engage with Scottish Stroke Improvement Programme (SSIP), where our performance is measured using the Scottish Stroke Care Audit. [3] Performances in hyper-acute services, rehabilitation services, and TIA clinic services are included in this audit. The recent SSIP also recognised that strategies are needed to maintain high-quality stroke care with all health boards demonstrating continuous training for all stroke staff, and particularly, up-to-date training in advanced stroke imaging for stroke physicians and radiologists. Stroke medicine is at a challenging juncture that continues to evolve further in the years to come. “Taking Up Stroke” is half the battle, and one that is at least optimistic locally, thanks to the efforts of our team of stroke clinicians and educators. The next aim of the Ninewells Stroke team will be to extend thrombectomy into a 24/7 hub service and maintain a high delivery of care for its patients. Acknowledgement: Many thanks to Dr Rachel Shedden, Dr Danisha Bhuckory, and Dr Sarah Ross for lending their opinion on the topic.

Saturday, June 29, 2024

Share your experience of post-stroke fatigue to help others - UK

 Explain to them how useless your doctor is in treating post stroke fatigue, they've known about it for decades, yet have DONE NOTHING! Don't talk about your problems with fatigue, DEMAND TO KNOW WHO IS GOING TO SOLVE IT! NO EXCUSES!

The only way others can be helped by your testimony is if YOU  tell them they need to CURE FATIGUE! No excuses.

Share your experience of post-stroke fatigue to help others

Different Strokes is looking to recruit volunteers for taking part in research in partnership with the Universities of Birmingham and Cambridge.

We are interested in hearing from both stroke survivors and family members/carers of stroke survivors.

This would involve being filmed talking about your experiences of post-stroke fatigue.

COMbAT (COproduction and evaluation of a self-MAnagemenT intervention for post-stroke fatigue) is a self-management programme to help people cope with fatigue following a stroke. (Wrong goal, Survivors don't want to 'cope'! They want recovery. Why aren't you delivering that?)

It is being developed by experts led by the Universities of Birmingham and Cambridge. 

Share your experience of post-stroke fatigue to help others

People affected by stroke have told us that hearing other people’s experiences of fatigue is extremely helpful. Therefore, we want to include videos of people telling their fatigue stories in our self-management programme.

We are looking for volunteers to be filmed talking about their experience of post-stroke fatigue, how it affected their life, and tips/ tricks to manage fatigue. The videos or audio clips will be included in the fatigue self-management programme to help others affected by fatigue.

With your help, we want to empower stroke survivors to better manage their fatigue, enabling them to engage in activities that bring joy, value and meaning to their lives.

Who can take part?

  • Aged 18 years and over;
  • Live in the UK;
  • You feel tired all the time or get tired very quickly since your stroke;
  • OR you are a family member/ carer of someone who has post-stroke fatigue.

What would taking part involve?

There are different ways to be involved:

  • Film yourself on your phone or laptop answering questions;
  • The team can film you during an online meeting (such as Zoom);

There will be some opportunities to be filmed in person if you prefer.

You will receive a £25 voucher for your contribution

Next Steps

To express an interest please click on the button below to complete the online form.

Once you submit this you will be contacted directly by a member of the COMbAT Fatigue research team by the end of August 2024. 

The research has been funded by the National Institute for Health and Care Research (NIHR) and Stroke Association (Research ID: SA/NIHR 23\205012).