Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, January 24, 2013

How has stroke changed your life? questionaire from NSA

Just got this as an email. Extremely disappointed in it. No space for written answers. No specificity to any of the questions. There is nothing in any of the answers received that could be used to create and fill survivor needs. Taryn, I expected better, something closer to the British Stroke Association.
Basic Stationery Top - Redesign 2010
Dear dean,
We like to start the year off right, and for us at National Stroke Association, that means equipping ourselves with all of your needs as a person interested in knowing more about stroke.
We readied our anonymous Annual Community Needs Survey project earlier than ever so we can make sure our programs and resources in 2013 are designed to fit your current needs.
I invite you to take our annual survey by clicking here now. The questions are designed to tell us more about how you learn, how you wish to receive information and how we can better serve your needs. It will only take a few minutes and it will help shape all of the outreach we do for you and others like you.
Many of our staff and board members have helped develop this important survey project and we have put much thought into how we can best ensure your needs are met. Your feedback is most valued and we are grateful for your support as we continue to identify ways to better serve the stroke community at large.
Thank you for your time.
Warm regards,
signed by Taryn Fort
Taryn Fort
Director, Marketing and Communications
National Stroke Association
Posted by at
Labels: , ,

1 comment:

Subscribe to: Post Comments (Atom)