Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, March 16, 2016

New research highlights need to give greater consideration to sleep in stroke care

I was perpetually exhausted while in the hospital, one attempt using finger oximetry that totally missed my sleep apnea. I do wonder if sleeping pills actually create useful sleep. I had them almost every night, nurses would hand them out like candy. We need a stroke protocol here.
Maybe this might help; most of these were written in 2013 which shows you how appallingly slow  stroke research is disseminated to clinical practice. That's because we have NO stroke leadership pushing best practices.

How sleep acts as a cleaning system for the brain

http://www.alphagalileo.org/ViewItem.aspx?ItemId=162152&CultureCode=en
Surrey, University of
Researchers identify sleep as a problem in patients with stroke, and highlight the need to give greater consideration to sleep in stroke care, and in particular stroke rehabilitation.
•             NICE guideline on stroke rehabilitation does not reference sleep at all
•             Sleep essential for learning, mental and physical health
•             Stroke care mainly focussed on daytime activity and ignores sleep altogether
Latest findings from the University of Surrey and University of Freiburg all point towards the important role of sleep in patients with stroke.  However, at present, sleep is rarely considered in in-patient and community-based stroke care.  The team of researchers also found that this is despite a number of studies that highlights patients with stroke often experience difficulties with their sleep.
Patients often report that going to sleep and staying asleep is difficult and aggravates the challenges of coping with everyday activities. But how much do we really know about the sleep of patients with chronic stroke and how their sleep compares to that of other older healthy people?  For the first time, the researchers have addressed this question by drawing together all existing research comparing patients with stroke with control populations using polysomnography, the gold standard method to study sleep.
The study, published in the journal PLOS ONE, revealed that sleep is poor in stroke patients, but the research also highlighted the lack of knowledge in particular with regard to older people and chronic patients. For example, the team found no study comparing the sleep physiology of chronic stroke patients with other people in their respective age group.  While there is some information on changes of sleep difficulties throughout stroke recovery, how stroke severity, lesion location, and sleep are linked to physical and mental health is generally unexplored.
“Sleep is essential for learning, mental and physical health in everybody but even more so for chronic stroke patients. A comprehensive and holistic understanding of sleep is therefore needed to improve rehabilitation effectiveness and ensure quality long term care,” said lead author Professor Annette Sterr from the University of Surrey.
“However, this link between sleep and stroke has not yet entered clinical practice.  The recent guideline for stroke rehabilitation issued by the UK National Institute for Health and Care Excellence (NICE) provides a detailed account of the medical, physical and psychological needs to be met through in-and outpatients stroke care, but these recommendations make no comment on sleep.  Moreover, stroke care is focussed on daytime activity and ignores sleep altogether.
“In the UK, strokes are a major health problem. Every year, around 110,000 people have a stroke in England and it is the third largest cause of death.  One key theme emerging through our research is the need to give greater consideration to sleep in stroke care, and in particular in stroke rehabilitation.  By doing so this will ensure that each patient is treated fairly and an appropriate course of treatment is planned and implemented.”

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