Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, July 6, 2021

Stroke Priority Setting Partnership - Stroke Association; UK

 But you are completely missing the only goal in stroke. 100% recovery. YOU have to change that by screaming at whomever is in charge here and completely failed at their job.

 Stroke Priority Setting Partnership - Stroke Association; UK

The Stroke Priority Setting Partnership worked with over 1,400 people affected by stroke and care professionals to establish priority areas for research across the stroke care pathway.  

Research can help save and rebuild more lives after stroke by driving improvements in treatment and care. But only £25 per stroke survivor is dedicated to research in a year. This compares to £161 per person living with cancer.

In order to address these priority areas and improve the lives of people affected by stroke, investment in stroke research must significantly increase. 

Priority areas for stroke research

There are two lists of priority areas:  

Priority 1: Stroke prevention, diagnosis, pre-hospital and hospital care. 

This includes research to stop stroke happening for the first time, treat stroke caused by bleeding in the brain, and reduce complications of a stroke.  

 

Priority 2: Stroke rehabilitation and long-term care. 

This includes research to improve care for mental and emotional problems after stroke, stroke services in the community and understanding of the long-term impacts of stroke on everyday life.  

The 18 priorities listed are not correct, most are secondary problems which would be solved by tackling the primary problem,100% recovery.

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Research over the last two decades has identified treatments that prevent stroke and improve its outcome. But the number of people struck down by stroke is rising in the UK. [...] These lists of uncertainties are wish lists for people affected by stroke and to-do lists for funding agencies that want to improve outcomes and reduce the burden of stroke.
Professor Rustam Al-Shahi Salman, British Association of Stroke Physicians President (2019-2021) and Steering Group member.
 
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