Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there. Did your doctor somehow miss the recovery protocol that Pedro Bach-y-Rita used to recover fully back in 1958 with only a partial brain?

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Showing posts with label small bore idea. Show all posts
Showing posts with label small bore idea. Show all posts

Thursday, April 20, 2017

May is National Stroke Awareness Month - 2017

So rather than actually solve any of the problems in stroke, let's just be lazy and raise awareness. Damn small bore ideas, I want the BHAGs(Big Hairy Audacious Goals) worked on and solved.

1. Make neuroplasticity repeatable on demand. 
2. Make neurogenesis repeatable on demand.
 3. Solve spasticity, Ignore Dr. William M. Landaus' pronouncements on this. 
4. Solve fatigue.
5. Solve aphasia.
6. 100% recovery for ALL survivors.

Sunday, October 16, 2016

Innovative organisations can apply for a share of up to £2.7 million to develop new ways of improving care for stroke patients at home - Innovate UK

Stupid, stupid, stupid. Going after the small bore ideas rather than breakthrough ones. Does no one have ANY fucking strategy to solve all the problems in stroke? Other than me? Yes, I am fucking arrogant, deal with it.
https://www.gov.uk/government/news/improving-care-for-stroke-patients-apply-for-innovation-funding
A Northern Ireland-led international consortium is inviting innovative businesses to apply for a share of up to £2.7 million to develop new technical care solutions for stroke patients.
The project - Mobile Assistance for Groups and Individuals in the Community (MAGIC) - aims to discover innovative approaches to post-stroke care and improve the independence of stroke survivors.
This competition is in 3 phases:
  • phase 1 – successful applicants will receive funding of up to €60,000 to carry out feasibility studies / solution development projects lasting 6 months
  • phase 2 - successful companies from phase 1 will receive funding of up to €105,700 to develop prototypes of their proposed solutions
  • phase 3 - successful companies from phase 2 will receive funding of up to €930,000 to develop their solutions at scale in Northern Ireland and Italy
The MAGIC Post-Stroke challenge is funded through the Horizon 2020 programme. This is the first successful bid for funding from the Horizon 2020 pre-commercial procurement fund in the UK and Ireland. The Northern Ireland Department of Health is running this competition. Other NI participants are the Health and Social Care Board, the Public Health Agency, Invest Northern Ireland and Ulster University. There are also international partners from Ireland, Italy, Finland, Spain, Luxembourg and Denmark.

Competition information

  • this competition is open now
  • the application deadline is 3pm on Friday 9 December 2016
  • you must register and apply online via the eTendersNI website
  • the call for tender number for this competition is 601494


Monday, June 27, 2016

Stroke rehabilitation research needs to be different to make a difference

Except that our fucking failures of stroke associations don't even have a strategy for what research needs to be done to solve all the problems in stroke.
http://f1000research.com/articles/5-1467/v1


This article is included in the F1000 Faculty Reviews channel.

Abstract


Stroke continues to be a major cause of adult disability. In contrast to progress in stroke prevention and acute medical management, there have been no major breakthroughs in rehabilitation therapies. Most stroke rehabilitation trials are conducted with patients at the chronic stage of recovery and this limits their translation to clinical practice. Encouragingly, several multi-centre rehabilitation trials, conducted during the first few weeks after stroke, have recently been reported; however, all were negative. There is a renewed focus on improving the quality of stroke rehabilitation research through greater harmonisation and standardisation of terminology, trial design, measures, and reporting. (Shit, you idiots you solve for exactly how neuroplasticity or neurogenesis is repeatable. Quit thinking microscopic.)However, there is also a need for more pragmatic trials to test interventions in a way that assists their translation to clinical practice. Novel interventions with a strong mechanistic rationale need to be tested in both explanatory and pragmatic trials if we are to make a meaningful difference to stroke rehabilitation practice and outcomes.

Wednesday, June 1, 2016

World Stroke Congress 2016 exhibit - Post Stroke Hobbies

What a fucking small idea. Nothing like ignoring all the problems in stroke, not even considering any of the  BHAGs(Big Hairy Audacious Goals) 

 that need solving: 

1. 30% get spasticity NOTHING THAT WILL CURE IT.

2. At least half of all stroke survivors experience fatigue Or is it 70%?

Or is it 40%?

NOTHING THAT WILL CURE IT.

3. Over half of stroke patients have attention problems.

NOTHING THAT WILL CURE IT.

4.  The incidence of constipation was 48%.

NO PROTOCOLS THAT WILL CURE IT.

5. No EXACT stroke protocols that address any of your muscle limitations.

6. Poststroke depression(33% chance)

NO PROTOCOLS THAT WILL ADDRESS IT. 

7.  Poststroke anxiety(20% chance) NO PROTOCOLS THAT WILL ADDRESS IT. 

8. Posttraumatic stress disorder(23% chance)  NO PROTOCOLS THAT WILL ADDRESS IT.

  9.  12% tPA efficacy for full recovery NO ONE IS WORKING ON SOMETHING BETTER.

10.  10% seizures post stroke NO PROTOCOLS THAT WILL ADDRESS IT. 

11. 21% of patients had developed cachexia NO PROTOCOLS THAT WILL ADDRESS IT. 

 

12. You lost 5 cognitive years from your stroke  NO PROTOCOLS THAT WILL ADDRESS IT.

13.  33% dementia chance post-stroke from an Australian study?

       Or is it 17-66%?

       Or is it 20% chance in this research?

NO PROTOCOLS THAT WILL ADDRESS THIS

World Stroke Congress 2016 exhibit - Post Stroke Hobbies 

Dear Colleagues,
Following the success of the stroke art exhibition at the last World Stroke Congress in Istanbul, we are planning a similar event for hobbies, to be on display at the next congress in Hyderabad in October, 2016.
"A hobby is a regular activity that is done for enjoyment, typically during one's leisure time. Hobbies can include collecting themed items and objects, engaging in creative and artistic pursuits, playing sports, or pursuing other amusements."
Many stroke survivors find great solace in taking up hobbies which are also an important activity in rehabilitation following their stroke. We feel an exhibition of the different varieties could inspire and encourage others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
Click here to find out how patients can enter.
submit your hobby information
- See more at: http://www.world-stroke.org/newsletter/latest-updates/18-news/latest-updates/280-post-stroke-hobbies-call-for-submissions#sthash.J3A45QRY.dpuf


Dear Colleagues,
Following the success of the stroke art exhibition at the last World Stroke Congress in Istanbul, we are planning a similar event for hobbies, to be on display at the next congress in Hyderabad in October, 2016.
"A hobby is a regular activity that is done for enjoyment, typically during one's leisure time. Hobbies can include collecting themed items and objects, engaging in creative and artistic pursuits, playing sports, or pursuing other amusements."
Many stroke survivors find great solace in taking up hobbies which are also an important activity in rehabilitation following their stroke. We feel an exhibition of the different varieties could inspire and encourage others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
Click here to find out how patients can enter.

My hobby is to document all the ways that the stroke world can be improved, but it doesn't lend itself to a picture.
submit your hobby information
Dear Colleagues,
Following the success of the stroke art exhibition at the last World Stroke Congress in Istanbul, we are planning a similar event for hobbies, to be on display at the next congress in Hyderabad in October, 2016.
"A hobby is a regular activity that is done for enjoyment, typically during one's leisure time. Hobbies can include collecting themed items and objects, engaging in creative and artistic pursuits, playing sports, or pursuing other amusements."
Many stroke survivors find great solace in taking up hobbies which are also an important activity in rehabilitation following their stroke. We feel an exhibition of the different varieties could inspire and encourage others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
Click here to find out how patients can enter.
submit your hobby information
- See more at: http://www.world-stroke.org/newsletter/latest-updates/18-news/latest-updates/280-post-stroke-hobbies-call-for-submissions#sthash.J3A45QRY.dpuf

Monday, May 9, 2016

Run with Stroke Challenge and get a free training program - National Stroke Association

A completely small bore idea. and you wonder why nothing gets solved in stroke. Because nothing difficult is even tried. Put a challenge out there like; ' Donate to solve the excitoxicity neuron deaths in stroke' or 'Donate to solve the glutamate poisoning deaths in stroke'.
These would bring in money and actually solve some of the problems in stroke. But NO, let's do more stroke awareness because we don't want to solve stroke at all, we just want to have jobs for a while longer. DAMN THEM ALL. 

Run with Stroke Challenge and get a free training program - National Stroke Association



Learn more about the Stroke Challenge teams
FacebookTwitterPinterest

TCS New York City Marathon Logo
Join now
Dear Dean,
Sign up for the 2016 TCS New York City Marathon Stroke Challenge team and get a free marathon training program!
We still have spots on our 2016 Stroke Challenge New York City Marathon team.  We want you to join us! Never run a marathon before? Intrigued by the idea but not sure where to start? Or maybe you’re an experienced runner looking to set a personal best. When you register with Stroke Challenge you have the opportunity to receive a 12-, 16-, or 20-week training program designed by New York Road Runners.
Don’t delay. Spots are limited and the 20-week program starts June 20. Submit your application today.
As a member of our Stroke Challenge team, you’ll have the experience of a lifetime running what is described as a 26.2 mile block party through the world’s most diverse city.  When you raise money for National Stroke Association, you are supporting compelling education and programs focused on prevention, treatment, rehabilitation, and support for all impacted by stroke.
Join a community of teammates and volunteers and you’ll receive:
  • Guaranteed entry into the sold-out, lottery-only race
  • Dri-fit Stroke Challenge team t-shirt
  • 12-, 16-, or 20-week training program provided by New York Road Runners
  • An opportunity to earn a Stroke Challenge team jacket
  • A personal fundraising page and fundraising support throughout the season
  • Team dinner pre-event and weekend event staff support
This lottery-only race is completely sold out. But you can still experience the excitement of TCS New York City Marathon with Stroke Challenge team.
To join our 2016 TCS New York City Marathon team, please submit an application.
Questions? Contact Betsy Hailstone at 303-754-0931 or events@stroke.org.
Sincerely,
Betsy Hailstone Signature
Betsy Hailstone
Sr. Coordinator, Development