So rather than actually solve any of the problems in stroke, let's just be lazy and raise awareness. Damn small bore ideas, I want the BHAGs(Big Hairy Audacious Goals) worked on and solved.
1. Make neuroplasticity repeatable on demand.
2. Make neurogenesis repeatable on demand.
3. Solve spasticity, Ignore Dr. William M. Landaus' pronouncements on this.
4. Solve fatigue.
5. Solve aphasia.
6. 100% recovery for ALL survivors.
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 34,483 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke. DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there. Did your doctor somehow miss the recovery protocol that Pedro Bach-y-Rita used to recover fully back in 1958 with only a partial brain?
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
Showing posts with label small bore idea. Show all posts
Showing posts with label small bore idea. Show all posts
Thursday, April 20, 2017
Sunday, October 16, 2016
Innovative organisations can apply for a share of up to £2.7 million to develop new ways of improving care for stroke patients at home - Innovate UK
Stupid, stupid, stupid. Going after the small bore ideas rather than breakthrough ones. Does no one have ANY fucking strategy to solve all the problems in stroke? Other than me? Yes, I am fucking arrogant, deal with it.
https://www.gov.uk/government/news/improving-care-for-stroke-patients-apply-for-innovation-funding
https://www.gov.uk/government/news/improving-care-for-stroke-patients-apply-for-innovation-funding
A Northern Ireland-led international consortium is inviting
innovative businesses to apply for a share of up to £2.7 million to
develop new technical care solutions for stroke patients.
The project - Mobile Assistance for Groups and Individuals in the Community (MAGIC) - aims to discover innovative approaches to post-stroke care and improve the independence of stroke survivors.
This competition is in 3 phases:
The project - Mobile Assistance for Groups and Individuals in the Community (MAGIC) - aims to discover innovative approaches to post-stroke care and improve the independence of stroke survivors.
This competition is in 3 phases:
- phase 1 – successful applicants will receive funding of up to €60,000 to carry out feasibility studies / solution development projects lasting 6 months
- phase 2 - successful companies from phase 1 will receive funding of up to €105,700 to develop prototypes of their proposed solutions
- phase 3 - successful companies from phase 2 will receive funding of up to €930,000 to develop their solutions at scale in Northern Ireland and Italy
Competition information
- this competition is open now
- the application deadline is 3pm on Friday 9 December 2016
- you must register and apply online via the eTendersNI website
- the call for tender number for this competition is 601494
Monday, June 27, 2016
Stroke rehabilitation research needs to be different to make a difference
Except that our fucking failures of stroke associations don't even have a strategy for what research needs to be done to solve all the problems in stroke.
http://f1000research.com/articles/5-1467/v1
Corresponding author:
Cathy M. Stinear
How to cite: Stinear CM. Stroke rehabilitation research needs to be different to make a difference [version 1; referees: 2 approved]. F1000Research 2016, 5(F1000 Faculty Rev):1467 (doi: 10.12688/f1000research.8722.1)
Copyright:
© 2016 Stinear CM.
This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Competing interests:
The author is a member of the Stroke Recovery and Rehabilitation Roundtable.
First published: 22 Jun 2016, 5(F1000 Faculty Rev):1467 (doi: 10.12688/f1000research.8722.1) Latest published: 22 Jun 2016, 5(F1000 Faculty Rev):1467 (doi: 10.12688/f1000research.8722.1)
http://f1000research.com/articles/5-1467/v1
This article is included in the F1000 Faculty Reviews channel.
Abstract
Stroke continues to be a major
cause of adult disability. In contrast to progress in stroke prevention
and acute medical management, there have been no major breakthroughs in
rehabilitation therapies. Most stroke rehabilitation trials are
conducted with patients at the chronic stage of recovery and this limits
their translation to clinical practice. Encouragingly, several
multi-centre rehabilitation trials, conducted during the first few weeks
after stroke, have recently been reported; however, all were negative.
There is a renewed focus on improving the quality of stroke
rehabilitation research through greater harmonisation and
standardisation of terminology, trial design, measures, and reporting.
(Shit, you idiots you solve for exactly how neuroplasticity or neurogenesis is repeatable. Quit thinking microscopic.)However, there is also a need for more pragmatic trials to test
interventions in a way that assists their translation to clinical
practice. Novel interventions with a strong mechanistic rationale need
to be tested in both explanatory and pragmatic trials if we are to make a
meaningful difference to stroke rehabilitation practice and outcomes.
First published: 22 Jun 2016, 5(F1000 Faculty Rev):1467 (doi: 10.12688/f1000research.8722.1) Latest published: 22 Jun 2016, 5(F1000 Faculty Rev):1467 (doi: 10.12688/f1000research.8722.1)
Wednesday, June 1, 2016
World Stroke Congress 2016 exhibit - Post Stroke Hobbies
What a fucking small idea. Nothing like ignoring all the problems in stroke, not even considering any of the BHAGs(Big Hairy Audacious Goals)
that need solving:
1. 30% get spasticity NOTHING THAT WILL CURE IT.
2. At least half of all stroke survivors experience fatigue Or is it 70%?
Or is it 40%?
NOTHING THAT WILL CURE IT.
3. Over half of stroke patients have attention problems.
NOTHING THAT WILL CURE IT.
4. The incidence of constipation was 48%.
NO PROTOCOLS THAT WILL CURE IT.
5. No EXACT stroke protocols that address any of your muscle limitations.
6. Poststroke depression(33% chance)
NO PROTOCOLS THAT WILL ADDRESS IT.
7. Poststroke anxiety(20% chance) NO PROTOCOLS THAT WILL ADDRESS IT.
8. Posttraumatic stress disorder(23% chance) NO PROTOCOLS THAT WILL ADDRESS IT.
9. 12% tPA efficacy for full recovery NO ONE IS WORKING ON SOMETHING BETTER.
10. 10% seizures post stroke NO PROTOCOLS THAT WILL ADDRESS IT.
11. 21% of patients had developed cachexia NO PROTOCOLS THAT WILL ADDRESS IT.
12. You lost 5 cognitive years from your stroke NO PROTOCOLS THAT WILL ADDRESS IT.
13. 33% dementia chance post-stroke from an Australian study?
Or is it 17-66%?
Or is it 20% chance in this research?
NO PROTOCOLS THAT WILL ADDRESS THIS
World Stroke Congress 2016 exhibit - Post Stroke Hobbies
Dear Colleagues,
Following
the success of the stroke art exhibition at the last World Stroke
Congress in Istanbul, we are planning a similar event for hobbies, to be
on display at the next congress in Hyderabad in October, 2016.
"A hobby is
a regular activity that is done for enjoyment, typically during one's
leisure time. Hobbies can include collecting themed items and objects,
engaging in creative and artistic pursuits, playing sports, or pursuing
other amusements."
Many
stroke survivors find great solace in taking up hobbies which are also
an important activity in rehabilitation following their stroke. We feel
an exhibition of the different varieties could inspire and encourage
others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
- See more at:
http://www.world-stroke.org/newsletter/latest-updates/18-news/latest-updates/280-post-stroke-hobbies-call-for-submissions#sthash.J3A45QRY.dpuf
Dear Colleagues,
Following
the success of the stroke art exhibition at the last World Stroke Congress in
Istanbul, we are planning a similar event for hobbies, to be on display at the
next congress in Hyderabad in October, 2016.
"A hobby is
a regular activity that is done for enjoyment, typically during one's leisure
time. Hobbies can include collecting themed items and objects, engaging in
creative and artistic pursuits, playing sports, or pursuing other
amusements."
Many
stroke survivors find great solace in taking up hobbies which are also an
important activity in rehabilitation following their stroke. We feel an
exhibition of the different varieties could inspire and encourage others. Read
the entire letter here.
Greetings,
Sandra
Levy
Secretary
Stroke Support Organizations Committee
My hobby is to document all the ways that the stroke world can be improved, but it doesn't lend itself to a picture.

Dear Colleagues,
Following
the success of the stroke art exhibition at the last World Stroke
Congress in Istanbul, we are planning a similar event for hobbies, to be
on display at the next congress in Hyderabad in October, 2016.
"A hobby is
a regular activity that is done for enjoyment, typically during one's
leisure time. Hobbies can include collecting themed items and objects,
engaging in creative and artistic pursuits, playing sports, or pursuing
other amusements."
Many
stroke survivors find great solace in taking up hobbies which are also
an important activity in rehabilitation following their stroke. We feel
an exhibition of the different varieties could inspire and encourage
others. Read the entire letter here.
Greetings,
Sandra Levy
Secretary Stroke Support Organizations Committee
- See more at:
http://www.world-stroke.org/newsletter/latest-updates/18-news/latest-updates/280-post-stroke-hobbies-call-for-submissions#sthash.J3A45QRY.dpufMonday, May 9, 2016
Run with Stroke Challenge and get a free training program - National Stroke Association
A completely small bore idea. and you wonder why nothing gets solved in stroke. Because nothing difficult is even tried. Put a challenge out there like; ' Donate to solve the excitoxicity neuron deaths in stroke' or 'Donate to solve the glutamate poisoning deaths in stroke'.
These would bring in money and actually solve some of the problems in stroke. But NO, let's do more stroke awareness because we don't want to solve stroke at all, we just want to have jobs for a while longer. DAMN THEM ALL.
Run with Stroke Challenge and get a free training program - National Stroke Association
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Sign up for the 2016 TCS New York City Marathon Stroke Challenge team and get a free marathon training program! We still have spots on our 2016 Stroke Challenge New York City Marathon team. We want you to join us! Never run a marathon before? Intrigued by the idea but not sure where to start? Or maybe you’re an experienced runner looking to set a personal best. When you register with Stroke Challenge you have the opportunity to receive a 12-, 16-, or 20-week training program designed by New York Road Runners. Don’t delay. Spots are limited and the 20-week program starts June 20. Submit your application today. As a member of our Stroke Challenge team, you’ll have the experience of a lifetime running what is described as a 26.2 mile block party through the world’s most diverse city. When you raise money for National Stroke Association, you are supporting compelling education and programs focused on prevention, treatment, rehabilitation, and support for all impacted by stroke. Join a community of teammates and volunteers and you’ll receive:
To join our 2016 TCS New York City Marathon team, please submit an application. Questions? Contact Betsy Hailstone at 303-754-0931 or events@stroke.org. Sincerely, Betsy Hailstone Sr. Coordinator, Development |
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