Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, September 22, 2024

Understanding patients’ expectations key to improving preventive care after stroke

 Wow, these people don't understand a single thing about stroke survivor recovery! Fear of falling is solved by perturbation and fall prevention protocols, AND YOU HAVEN'T CREATED THEM YET? How incompetent can you be and still stay employed?

Understanding patients’ expectations key to improving preventive care after stroke

Key takeaways:

  • Fear of falling is the main concern of stroke survivors who do not engage in recommended physical activity.
  • Future clinical trials must address gaps in knowledge of proper post-stroke care(WRONG! SURVIVORS WANT 100% RECOVERY; NOT 'CARE', YOU BLITHERING IDIOTS!).

ORLANDO, Fla. — For stroke survivors, participation in preventive health behaviors, such as adhering to blood pressure medication and physical activity, depended on their outcome expectations, self-efficacy and agency, data show.

“We know that blood pressure is the most modifiable risk factor after stroke and we also know that about half of stroke survivors have uncontrolled blood pressure,” Imama A. Naqvi, MD, MS, assistant professor of neurology at Columbia University Irving Medical Center, said during a presentation at the American Neurological Association annual meeting. “We know that physical inactivity impairs recovery and that most of our stroke survivors are physically inactive.(Yeah, because you completely failed at getting them 100% recovery protocols! Own your failures and solve them!)

Doctor with a black patient
New research conducted in an underserved area of New York City yielded three main themes which were likely to assist clinicians in improving patients’ post-stroke recovery knowledge and behaviors. Image: Adobe Stock

Naqvi and colleagues assessed various influential factors which led to preventive post-stroke behaviors — including medication adherence and physical activity — in a cohort of Black and Hispanic individuals from an underserved community in New York City.

They conducted two rounds of qualitative interviews with 14 adults (mean age, 58.9; 50% women) who survived minor stroke and who were discharged from a comprehensive stroke center to their homes. Primary subjects of the interviews were based on patient knowledge of blood pressure management and behavior intended to stimulate physical activity.

The assessment also included collection of sociodemographic information, knowledge of post-treatment health recommendations, perceptions of barriers to successful community reintegration and knowledge of persons or actions which could facilitate recovery. In addition, patient-reported measures such as the International Physical Activity Questionnaire (IPAQ) and Short Form and Stages of Change – Continuous Measure (URICA-E2) were included for analysis along with data logged from wearable devices to track physical activity for 1 month.

According to results of the assessment, gaps existed between knowledge of and participation in healthy behaviors related to post-stroke recovery.

Naqvi and colleagues identified three themes that were likely to lead to increased participation and greater patient adherence to post-stroke recovery: positive outcome expectations; the ability to effectively take control of a journey to recovery; and the agency to make decisions that aid the process.

Data such as the mean daily step count (5,533±2,861) registering significantly lower than the recommended 10,000 per day, as well as lower than mean scores on the Patient Reported Outcomes Measurement Information System-Physical Function (PROMIS-PF) scale (patient reported, 44.9 ±9.8; population mean, 50 ±10) as a function of limited knowledge of existing recommendations, along with fear of falling, provided context for these discrepancies.

The researchers posited that addressing these themes in future clinical studies may alter existing behaviors that are likely to promote continued health.

“[The study] was helpful in creating an advisory group,” Naqvi said. “These are mildly disabled patients. These are not people who have severe disability, but they are self-restricting because they are afraid of falling.”

Sources/Disclosures

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Source:

Naqvi IA, et al. Influences on preventive health behaviors after minor stroke: Understanding patient perceptions and practices in an urban underserved population. Presented at: American Neurological Association annual meeting; Sept. 14-17, 2024; Orlando.

Disclosures: Naqvi reports no relevant financial disclosures. The study was supported by the National Center for Advancing Translational Sciences and by a grant from the NIH.

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