Deans' stroke musings: New research reinforces the need for better support for life after stroke

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, March 7, 2025

New research reinforces the need for better support for life after stroke

Because your doctors, therapists' and hospital are COMPLETE FUCKING FAILURES AT GETTING YOU 100% RECOVERED this useless research is needed! Anyone with any working neurons at all will tell you stroke rehab is a complete shitshow of failure!

New research reinforces the need for better support for life after stroke

A large-scale study from UCLH and UCL Queen Square Institute of Neurology highlights the real-world impact of life after stroke, revealing the significant burden faced by survivors.

The study captures the wide-ranging impacts of non-motor complications in areas such as mental health, sleep, fatigue, pain, social participation, and bowel and bladder function following stroke.

The research team said it is vital that stroke services focus on these aspects of recovery alongside the traditional focus of care which has been how quickly patients regain movement and physical independence.

The comprehensive meta-analysis, published in JAMA Network Open, analysed data from 117,440 stroke survivors over a 24-year period. The study revealed that 1 in 2 stroke survivors experience multiple adverse non-motor outcomes, with many complications continuing for a decade or more.

The review, led by Dr Hatice Ozkan, with senior authors Dr Robert Simister and Prof David Werring, reinforces findings from a smaller scale 2024 study from the team.

The team is calling for an urgent expansion of rehabilitation services to include non-motor complications. The team said stroke pathways must also integrate long-term follow-up for survivors, ensuring that post-stroke complications are identified and managed early.

Prof Werring said: “Non-motor complications such as fatigue, sleep disturbance and depression are just as debilitating as physical disabilities, yet they remain under-recognized and under-treated.”

Dr Simister said: “We have available treatments, but without clear pathways to integrate them into routine care, too many patients continue to struggle.”

Lead author Dr. Ozkan said: "Our comprehensive study shows the real-world impact of stroke and the urgent need for life-after-stroke care pathways addressing non-motor outcomes, which profoundly affect every aspect of a person’s life. Without patient-centred life after stroke pathways that include early recognition, standardised screening, and management, stroke survivors will continue to face slower recovery, greater dependency, and reduced quality of life. Therefore, current practices must improve to rebuild lives after stroke."