Deans' stroke musings

Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Friday, August 16, 2013

Stroke - Somebody Else's Problem

This is a major failing in the stroke world. No one is taking responsibility for
1. creating strategies to reduce damage from stroke,
2. researching them,
3.translating them into stroke protocols,
4. Training doctor and therapists in the new techniques/drugs.
 If stroke patients from years ago had started demanding recovery instead of blithely accepting their doctors pronouncements of ' You aren't going to recover/get better', we might have been further along.
Its why I am a complete arrogant asshole telling everyone that they don't know what they are doing.
From definition in Wikipedia;
Within the novel Life, the Universe and Everything of Douglas Adams's "The Hitchhiker's Guide to the Galaxy" his character Ford Prefect describes Somebody Else's Problem as:
An SEP is something we can't see, or don't see, or our brain doesn't let us see, because we think that it's somebody else's problem.... The brain just edits it out, it's like a blind spot. If you look at it directly you won't see it unless you know precisely what it is. Your only hope is to catch it by surprise out of the corner of your eye.
The narration then explains:
The technology involved in making something properly invisible is so mind-bogglingly complex that 999,999,999 times out of a billion it's simpler just to take the thing away and do without it....... The "Somebody Else's Problem field" is much simpler, more effective, and "can be run for over a hundred years on a single torch battery."
This is because it relies on people's natural predisposition not to see anything they don't want to, weren't expecting, or can't explain.
This is very similar to Tom Toles take on

Are we having more strokes?

 

We are going to have to create a great stroke association that does its own research and translational activities. And makes it their problem to solve as compared to the head in the sand existing stroke associations.  Notably like:
the Michael J. Fox Foundation
Myelin Repair and the
Alzheimers Association 
I could easily see shilling for donors, asking if they want to donate to the stem cell line of research, or the glutamate poisoning line, or the excitotoxicity line, or their own choice(naming rights available).
Or do they want to support the boring press release line, - F.A.S.T, eat healthy, exercise, prevention, etc.

2 comments:

  1. Love this! Who's starting that fabulous group? Ever consider writing grant applications to get it started? If you start it, I'll nominate you as president.

    ReplyDelete
  2. Thank you for being an arrogant asshole.

    ReplyDelete