Deans' stroke musings: Myelin Repair Foundation looks to take charge of MS drug development

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, December 4, 2012

Myelin Repair Foundation looks to take charge of MS drug development

This along with the Michael J Fox Foundation are where our stroke associations need to go. And that will only occur if we convince the boards that they are failing in their mission. They will have to change from doctor focused to survivor focused.

Ask them boldly, 'Will you be 100% positive that you will recover everything if you have a stroke?' 'What are you doing to change that?'

NSA board here:
I don't know where the ASA is posted

http://www.businessweek.com/articles/2012-11-29/speeding-up-the-discovery-of-drugs#r=hpt-ls
Entrepreneur Scott Johnson is positioning his Myelin Repair Foundation as the leader in finding drugs that could reverse multiple sclerosis by repairing the protective lining of nerve cells in the spinal cord and brain. "The challenge in medical research is that there ultimately is no one in charge," said FasterCures Executive Director Margaret Anderson. The MRF is coordinating research at nine labs and has set up its own research lab in pursuit of results that big drugmakers can easily take to market.