Deans' stroke musings: Help Save Stroke-related Medical Research

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, September 2, 2013

Help Save Stroke-related Medical Research

Another email from the National Stroke Association. Lets dissect this and see all the ways it fails.
1. It's asking others to do your job.
2. You have thrown your job responsibilities onto the government. The government doesn't care about stroke research.
What should occur.
1. The objective of your job should be to get stroke research following a defined plan or strategy - first failure, no strategy, you are relying on researchers and hoping they make breakthroughs.
2. A great stroke association would have public objectives and sponsored research to meet those objectives. Three groups that already do this and are much more successful at getting people involved.

Michael J. Fox Foundation
Myelin Repair
Alzheimers Association
3. Foundations would be much more willing to donate if specific directed research was being done.
The failing email here;
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Having trouble? View this message on our website.

Dear dean,

Stroke-related medical research funding is at risk. The nation’s primary stroke-related research agency, the National Institute for Neurological Disorders and Stroke (NINDS), has revolutionized stroke diagnosis, treatment and rehabilitation, including making the only treatment for acute stroke, tPA, possible. Despite these successes, the agency’s budget has been severely cut in ongoing budget clashes on Capitol Hill. As another round of budget negotiations gets underway this month, NINDS’ budget is being threatened again.

How can you help preserve future advancements in stroke care? Later this month, we’re joining a broad coalition of more than 140 organizations to send a simple message to Congress—provide cures, not cuts. Representatives from many of these organizations will be meeting face-to-face with members of Congress and their staff on Sept. 18 to ask that Congress preserve our nation’s investment in medical research activities.

You can participate in this event on Capitol Hill by communicating the “cures, not cuts” message to your members of Congress today. Your action will help support the advocates who will travel to Washington, D.C., to deliver this message in person later this month. Take action today and help make sure advancements in stroke care are realized for future generations.

Sincerely,