Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, September 23, 2013

Stroke Thinking?

Does anybody in the stroke medical world do this? There are millions of cases every year. It should be relatively simple for anyone with a modicum of brains and access to a few survivors to come up with improvements.
Don't the ASA, NSA and WSO do anything at all except issue press releases?
You start with these simple statistics and determine what will make them better over time. You do the necessary research yourself instead of hoping a researcher thinks of the experiment and does something about it.
General recovery guidelines show:
•10 percent of stroke survivors recover almost completely
•25 percent recover with minor impairments - I think I'm here, even though my impairments are not minor
•40 percent experience moderate to severe impairments requiring special care
•10 percent require care in a nursing home or other long-term care facility
•15 percent die shortly after the stroke, I bet with hyperacute treatment stopping the cascade of death this could be reduced substantially.
This is totally pathetic, only 10% recover completely,
If we don't change this thinking for the better your kids and grandkids will have just as bad an experience with recovery as you did.
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3 comments:

  1. J.L. MurpheySeptember 23, 2013 at 10:08 PM

    Dean,
    I found the NIH scale interesting. If it had been used on me at the time I arrived, they would have discounted my stroke. I would have scored 0 or the max 2 in all areas and yet I did have a stroke. I walked into the ER a bit wobbly. I could obey commands and movement with some difficulty. I was alert and oriented. I did exhibit a facial droop and slurred speech. Arm movements were sluggish but responded to commands. Now it took 3 days to get an MRI and total hemiparalysis to set in to show, the AHA moment, I did indeed have a stroke.

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  2. Elizabeth, John, Jack, and LukeSeptember 24, 2013 at 1:32 AM

    I'm surprised anyone has a full recovery....how?? Once I was "functional", talk of kicking me out of rehab couldn't come any faster...plateau??? What's that? I never stopped getting better in therapy and I would have worked myself crazy forever if they kept guiding me. I felt I could have had a full recovery if they kept working with me, but how am I supposed to know how to fix myself?? I got the boot early because I was functional...makes me really mad!!

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    Replies
    1. J.L. MurpheySeptember 24, 2013 at 10:40 PM

      Elizabeth Functional or adaptively able or far different than recovered as you well know. Insurance only pays for the first two because recovered is more expensive and time consuming.

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