Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Tuesday, October 14, 2014

'Like Being Buried Alive': Woman Recalls Experience Of Being Awake But Unable To Move For Weeks

Our stroke doctors really need to be remedially trained in bedside manners. You never discuss negative items anywhere within earshot of your patients.  Kates' blog here;
Stroke Recovery Tips - Kate Allatt

http://www.opposingviews.com/i/health/being-buried-alive-woman-recalls-experience-being-awake-unable-move-weeks
In 2010, Australian woman Kate Allatt was placed in a coma after she suffered a stroke. She regained consciousness after 10 days under, but her problems were far from over. As she lay conscious in her bed, it quickly became apparent to her that she was completely unable to communicate. Her mind had woken up, it seemed, but her body had not. This condition, which Allatt compares to being buried alive, is called Locked In Syndrome.
“Locked in syndrome is like being buried alive,” Allatt tells MailOnline. “You can think, you can feel, you can hear, but you can communicate absolutely nothing.”
Two weeks later, thanks to what Allatt says was a relentless inner drive to regain control of her body, Allatt regained consciousness. She says the conversations she overheard during her transitive state were truly the stuff of nightmares.
“It was so scary,” she says. “I can’t tell you. The fear, the anxiety, the terror… They thought I was in a vegetative state. I couldn’t move a muscle. There was no signal I was in there. I was on life support and they might have turned it off. I couldn’t breathe for myself but I could hear conversations that I didn’t want to hear.”
Now, four years later, Allatt has made a full recovery from both her stroke and the ensuing terrifying experience. She now spends her days raising awareness on the need for more medical training to handle situations like the one she was in. She notes that it was friends, not doctors, who were initially able to recognize signs of consciousness in her.
“Doctors are meant to do the Glasgow Coma Scale Test, which checks consciousness. Did they do that enough?” she asks. “Were there enough scans to check for brain activity? I feel so strongly that people who are minimally conscious, like I was, need to be assessed properly. We need a nurse trained in ICU who can, when someone is minimally conscious, sit with them two or three times a week. To establish communication if possible. To try and calm the patient and alleviate their fears.”
Allatt says people in her life have told her to move on from the experience, but she’s not willing to do that yet. She feels that, in her words, she needs to “beat the drum” for those who can’t do it for themselves.
“I need to talk about it because that’s how you learn to make improvements,” she says. “For the people who can't do it themselves - I need to beat the drum for them.”
- See more at: http://www.opposingviews.com/i/health/being-buried-alive-woman-recalls-experience-being-awake-unable-move-weeks#sthash.TwobnXvx.dpuf
 In 2010, Australian woman Kate Allatt was placed in a coma after she suffered a stroke. She regained consciousness after 10 days under, but her problems were far from over. As she lay conscious in her bed, it quickly became apparent to her that she was completely unable to communicate. Her mind had woken up, it seemed, but her body had not. This condition, which Allatt compares to being buried alive, is called Locked In Syndrome.

“Locked in syndrome is like being buried alive,” Allatt tells MailOnline. “You can think, you can feel, you can hear, but you can communicate absolutely nothing.”

Two weeks later, thanks to what Allatt says was a relentless inner drive to regain control of her body, Allatt regained consciousness. She says the conversations she overheard during her transitive state were truly the stuff of nightmares.

“It was so scary,” she says. “I can’t tell you. The fear, the anxiety, the terror… They thought I was in a vegetative state. I couldn’t move a muscle. There was no signal I was in there. I was on life support and they might have turned it off. I couldn’t breathe for myself but I could hear conversations that I didn’t want to hear.”

Now, four years later, Allatt has made a full recovery from both her stroke and the ensuing terrifying experience. She now spends her days raising awareness on the need for more medical training to handle situations like the one she was in. She notes that it was friends, not doctors, who were initially able to recognize signs of consciousness in her.

“Doctors are meant to do the Glasgow Coma Scale Test, which checks consciousness. Did they do that enough?” she asks. “Were there enough scans to check for brain activity? I feel so strongly that people who are minimally conscious, like I was, need to be assessed properly. We need a nurse trained in ICU who can, when someone is minimally conscious, sit with them two or three times a week. To establish communication if possible. To try and calm the patient and alleviate their fears.”

Allatt says people in her life have told her to move on from the experience, but she’s not willing to do that yet. She feels that, in her words, she needs to “beat the drum” for those who can’t do it for themselves.

“I need to talk about it because that’s how you learn to make improvements,” she says. “For the people who can't do it themselves - I need to beat the drum for them.”
In 2010, Australian woman Kate Allatt was placed in a coma after she suffered a stroke. She regained consciousness after 10 days under, but her problems were far from over. As she lay conscious in her bed, it quickly became apparent to her that she was completely unable to communicate. Her mind had woken up, it seemed, but her body had not. This condition, which Allatt compares to being buried alive, is called Locked In Syndrome.
“Locked in syndrome is like being buried alive,” Allatt tells MailOnline. “You can think, you can feel, you can hear, but you can communicate absolutely nothing.”
Two weeks later, thanks to what Allatt says was a relentless inner drive to regain control of her body, Allatt regained consciousness. She says the conversations she overheard during her transitive state were truly the stuff of nightmares.
“It was so scary,” she says. “I can’t tell you. The fear, the anxiety, the terror… They thought I was in a vegetative state. I couldn’t move a muscle. There was no signal I was in there. I was on life support and they might have turned it off. I couldn’t breathe for myself but I could hear conversations that I didn’t want to hear.”
Now, four years later, Allatt has made a full recovery from both her stroke and the ensuing terrifying experience. She now spends her days raising awareness on the need for more medical training to handle situations like the one she was in. She notes that it was friends, not doctors, who were initially able to recognize signs of consciousness in her.
“Doctors are meant to do the Glasgow Coma Scale Test, which checks consciousness. Did they do that enough?” she asks. “Were there enough scans to check for brain activity? I feel so strongly that people who are minimally conscious, like I was, need to be assessed properly. We need a nurse trained in ICU who can, when someone is minimally conscious, sit with them two or three times a week. To establish communication if possible. To try and calm the patient and alleviate their fears.”
Allatt says people in her life have told her to move on from the experience, but she’s not willing to do that yet. She feels that, in her words, she needs to “beat the drum” for those who can’t do it for themselves.
“I need to talk about it because that’s how you learn to make improvements,” she says. “For the people who can't do it themselves - I need to beat the drum for them.”
- See more at: http://www.opposingviews.com/i/health/being-buried-alive-woman-recalls-experience-being-awake-unable-move-weeks#sthash.TwobnXvx.dpuf

2 comments:

  1. On my blog I recall exactly what I was seeing/feeling/hearing DURING MY STROKE. Medical personnel MUST be trained to "shut up" when in the room of a patient they "think" can't comprehend what they're saying.

    I was having my stroke, listening to the ER staff alternately order my CT and MRI, while talking about the "bitching" weekend they had planned!

    I'm scared I'm dying, can't talk, can't move, terrified I'll never see my husband & boys again, and I am listening to these "medical professionals" plan their weekend!

    ReplyDelete
  2. On my blog I recall exactly what I was seeing/feeling/hearing DURING MY STROKE. Medical personnel MUST be trained to "shut up" when in the room of a patient they "think" can't comprehend what they're saying.

    I was having my stroke, listening to the ER staff alternately order my CT and MRI, while talking about the "bitching" weekend they had planned!

    I'm scared I'm dying, can't talk, can't move, terrified I'll never see my husband & boys again, and I am listening to these "medical professionals" plan their weekend!

    ReplyDelete