I know this is good work but overall this is the wrong place to focus efforts. The effort should be on creating a National Stroke Plan similar to the National Alzheimers Plan. That way we actually will have created a strategy to follow and can tackle all of the problems in stroke. This effort is just part of the godamned lazy press release notices that never get at the real work needed in stroke. Until they get a survivor in there to actually kick some butt and fire people will stroke associations actually work for the best needs of survivors.
http://www.stroke.org/newsletter/stroke-advocacy-network-enews-november-2014#article1
The Stroke Advocacy Network (SAN) has worked
diligently to push legislation in the House (H.R. 713) and the Senate
(S.367) that would permanently repeal the $1,920 cap on occupational and
$1,920 for speech and physical therapy services for Medicare
recipients. This fall, SAN joined a larger campaign in
an effort to secure a bipartisan majority of legislators co-sponsoring
the repeal, which would put pressure on Congressional leadership to hold
a vote on the bills. The target number of co-sponsors for the repeal
was 218 Representatives in the House and 51 Senators in the Senate.
Fortunately, SAN and coalition partners surpassed the
goal for the House bill with 222 co-sponsors. Although we have not yet
achieved a full repeal, this is a major milestone in SAN’s advocacy efforts and we would like to thank everyone who participated in the campaign.
What does this mean for the future? While this is just one step on
the journey toward making the caps a thing of the past, it’s an
important step. For the last 17 years, stroke survivors on Medicare who
have reached the caps have had to manage their care on a piecemeal
basis, through a difficult exceptions process. While Congress has
extended the exceptions process annually, with the current exception
expiring on March 31, 2015, this is not enough. When the new
Congressional session starts in January, your job as a member of the Stroke Advocacy Network will be to help returning and new members of Congress.
More at link
Use the labels in the right column to find what you want. Or you can go thru them one by one, there are only 28,972 posts. Searching is done in the search box in upper left corner. I blog on anything to do with stroke.DO NOT DO ANYTHING SUGGESTED HERE AS I AM NOT MEDICALLY TRAINED, YOUR DOCTOR IS, LISTEN TO THEM. BUT I BET THEY DON'T KNOW HOW TO GET YOU 100% RECOVERED. I DON'T EITHER, BUT HAVE PLENTY OF QUESTIONS FOR YOUR DOCTOR TO ANSWER.
Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.
What this blog is for:
My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
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