What an absolute fucking waste of time. 'Perceptions'. Aren't you glad your stroke researchers are that fucking clueless that they don't know the only goal in stroke is 100% recovery? And the mentors and senior researchers are just as bad. They all need to be fired.Pushing the limits of recovery in chronic stroke survivors: a descriptive qualitative study of users perceptions of the Queen Square Upper Limb Neurorehabilitation Programme
Citation
Pushing the limits of recovery in
chronic stroke survivors: a descriptive qualitative study of users
perceptions of the Queen Square Upper Limb Neurorehabilitation Programme
Publication history
- Received January 6, 2020
- Revised July 22, 2020
- Accepted August 21, 2020
- First published October 5, 2020.
Online issue publication October 05, 2020
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Abstract
Introduction
The Queen Square Upper Limb (QSUL) Neurorehabilitation Programme is a
clinical service within the National Health Service in the UK that
provides 90-hours of therapy over 3-weeks to stroke survivors with
persistent upper limb impairment. This study aimed to explore the
perceptions of participants of this programme, including clinicians,
stroke survivors and caregivers.
Design
Descriptive qualitative. Data analysis was performed using a
conventional thematic content approach to identify main themes by four
researchers to avoid any potential bias or personal motivations,
promoting confirmability.
Setting Clinical outpatient neurorehabilitation service.
Participants
Clinicians (physiotherapists, occupational therapists, rehabilitation
assistants) involved in the delivery of the QSUL Programme, as well as
stroke survivors and caregivers who had participated in the programme
were purposively sampled. Each focus group followed a series of
semi-structured, open questions that were tailored to the clinical or
stroke group. One independent researcher facilitated all focus groups,
which were audio-recorded and transcribed verbatim by a professional
transcription agency.
Results
Four focus groups were completed: three including stroke survivors
(n=16) and caregivers (n=2), and one including clinicians (n=11). The
main stroke survivor themes related to psychosocial aspects of the programme (‘you feel valued as an individual’), as well as the behavioural training provided (‘gruelling, yet rewarding’). The main clinician themes also included psychosocial aspects of the programme (‘patient driven ethos—no barriers, no rules’) and knowledge, skills and resources of clinicians (‘it is more than intensity, it is complex’).
Conclusions
As an intervention, stroke survivors and clinicians consider the QSUL
Programme to be both comprehensive and complex. The nature of the
interventions in the programme spans psychosocial and behavioural
domains. We suggest the future clinical trials of upper limb
rehabilitation consider testing the efficacy of these multiple
interacting components.
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Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC.
No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This
is an open access article distributed in accordance with the Creative
Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits
others to distribute, remix, adapt, build upon this work
non-commercially, and license their derivative works on different terms,
provided the original work is properly cited, appropriate credit is
given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
Pushing the limits of recovery in chronic stroke survivors: a descriptive qualitative study of users perceptions of the Queen Square Upper Limb Neurorehabilitation Programme
Citation
Publication history
- Received January 6, 2020
- Revised July 22, 2020
- Accepted August 21, 2020
- First published October 5, 2020.
Request permissions
If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many differ
Abstract
Introduction The Queen Square Upper Limb (QSUL) Neurorehabilitation Programme is a clinical service within the National Health Service in the UK that provides 90-hours of therapy over 3-weeks to stroke survivors with persistent upper limb impairment. This study aimed to explore the perceptions of participants of this programme, including clinicians, stroke survivors and caregivers.
Design Descriptive qualitative. Data analysis was performed using a conventional thematic content approach to identify main themes by four researchers to avoid any potential bias or personal motivations, promoting confirmability.
Setting Clinical outpatient neurorehabilitation service.
Participants Clinicians (physiotherapists, occupational therapists, rehabilitation assistants) involved in the delivery of the QSUL Programme, as well as stroke survivors and caregivers who had participated in the programme were purposively sampled. Each focus group followed a series of semi-structured, open questions that were tailored to the clinical or stroke group. One independent researcher facilitated all focus groups, which were audio-recorded and transcribed verbatim by a professional transcription agency.
Results Four focus groups were completed: three including stroke survivors (n=16) and caregivers (n=2), and one including clinicians (n=11). The main stroke survivor themes related to psychosocial aspects of the programme (‘you feel valued as an individual’), as well as the behavioural training provided (‘gruelling, yet rewarding’). The main clinician themes also included psychosocial aspects of the programme (‘patient driven ethos—no barriers, no rules’) and knowledge, skills and resources of clinicians (‘it is more than intensity, it is complex’).
Conclusions As an intervention, stroke survivors and clinicians consider the QSUL Programme to be both comprehensive and complex. The nature of the interventions in the programme spans psychosocial and behavioural domains. We suggest the future clinical trials of upper limb rehabilitation consider testing the efficacy of these multiple interacting components.
This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
ent ways.
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