Changing stroke rehab and research worldwide now.Time is Brain!Just think of all the trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 493 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal.

Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.
My back ground story is here:http://oc1dean.blogspot.com/2010/11/my-background-story_8.html

Monday, July 23, 2018

Survey on Priorities for Stroke Rehabilitation Implementation: Environmental scan to inform the International Stroke Recovery and Rehabilitation Working Group

Couldn't find the survey. You are all stroke professionals working with strokees so answer it if you find it.  I want to change the discussion to how to get to 100% recovery rather than the tyranny of low expectations all stroke medical professionals seem to be fixated on.

https://ubc.ca1.qualtrics.com/jfe/form/SV_ebW5IItg9dNdKfj

You have been invited to complete this survey as you are a health professional working with people in stroke rehabilitation. This survey is designed to gather information about your perspectives on adult stroke rehabilitation practice (for people 18 years of age and over) in your local region, including research evidence to practice gaps and priorities for practice change.  This information will be used as part of an international environmental scan of stroke rehabilitation implementation priorities and will inform recommendations of an international working group led by Professor Janice Eng (University of British Columbia, Canada) and Professor Marion Walker (University of Nottingham, UK). Please see 

https://strokerecovery.org.au/cre/stroke-recovery-and-rehabilitation-roundtable-advancing-the-field-of-stroke-research/ 

for a full description of the International Stroke Recovery and Rehabilitation Roundtables.

We hope that this information will be useful in promoting practice change and inform policy directions and funding opportunities.  Your responses will remain anonymous. We anticipate that the online survey will take 10-15 minutes of your time.

By completing this survey you have consented for us to use this anonymous data. You do not have to answer any questions you are not comfortable answering. If you would like to receive a summary of results, please provide your email at the end of the survey.  

There is an online draw and we will provide a $25 Amazon (or similar) gift card to ten randomly selected people who have completed the survey. If you would like to participate in the draw, please provide your email at the end of survey.

If you provide your email details, these will not be linked to any other data that you provide in the online survey. Data will be stored anonymously for 5 years on secure University of British Columbia servers. Only the researchers (Drs. Janice Eng & Marie-Louse Bird) have access to the data collected from the online survey. Participating in this online survey is voluntary and participants can withdraw at any time without penalty. 

This research project has been approved by the University of British Columbia Office of Research Ethics. If you have any concerns or complaints about your rights as a research participant and/or your experiences while participating in this study, contact the Research Participant Complaint Line in the University of British Columbia Office of Research Ethics at 604-822-8598 or if long distance e-mail RSIL@ors.ubc.ca or call toll free 1-877-822-8598.

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