Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, December 8, 2023

2024 European Life After Stroke Forum in Dublin

Every single session is about failure to get survivors 100% recovered. If you can't accomplish what stroke survivors want let better people in that will get there. None of this would be necessary if YOU WOULD DO YOUR FUCKING JOBS OF 100% RECOVERY!

2024 European Life After Stroke Forum in Dublin

2024 Programme

Plenary 1: Building the evidence for support for life after stroke

Overview

Building on the “A Life Saved is a Life Worth Living” report, this session presents current evidence and research about supporting people and their families to live well after a stroke. The session will also highlight key gaps in the evidence base and identify priorities for more funding, more lobbying and more evidence.

What kind of evidence is really important? A personal perspective

Grethe Lunde

Stroke Survivor, Norway

Mapping the evidence base for life after stroke: A research perspective

TBC

How can we use research evidence to improve life after stroke: A clinical perspective

Associate Professor Margit Alt Murphy

University of Gothenburg, Sweden

Plenary 2: Life after stroke - support in action

Overview

This session will focus on the different perspectives of what a good life after stroke’ looks like through discussion and presentations around different experiences and good practice from different countries. 

Perspectives from Europe

Videos from people with lived experience from around Europe: ‘After you left hospital what non-medical support did you find most helpful to help you live a good life after stroke?’

TBC

Perspectives from support organisations

What types of support have made the most difference to people’s lives and what have been the most successful strategies?

Dr Michael Brinkmeier

Stiftung Deutsche Schlaganfall-Hilfe, Germany

Mercé Ayesta

Fundacio Ictus, Catalonia

Katherine Staley

Associate Director of Services at the Stroke Association

Plenary 3: A showcase of life after stroke support in Ireland

Overview

In this session, we will discuss how we developed a support service in Ireland to meet the unmet need of those affected by stroke, the challenges and opportunities we face, and we will share top tips on how to set this service up in your country.

The Stroke Connect Service - Filling the gap for support post discharge in Ireland

Helen Gaynor

Irish Heart Foundation, Ireland

My journey through the Stroke Connect Service and beyond

Fiona Bardon

Stroke Survivor, Ireland

Meeting the unmet need for information on stroke for children and young people (CYP) - The CHATS booklet

Wendy Moynan

Tallaght University Hospital

Dr Aine Connolly

St James Hospital, Dublin

What does a good life after stroke mean for you and what support did you need to make it happen?

TBC

Parallel Sessions

A disproportionate burden? Life after stroke in women

Contextualising sex and gender to improve stroke research, policy and practice

Dr Else Sandset

Oslo University Hospital, Norway

Specific secondary stroke risk factors in women after stroke

Professor Anita Arsovska

Universities Cyril and Methodius, North Macedonia

Raising a family after stroke - My story

Diana Wong Ramos

Stroke Survivor, Portugal AVC Stroke Organisation, Portugal

Spasticity: What is it and how can we manage it?

The stroke survivor perspective of spasticity

TBC

What is spasticity?

Dr Iwona Sarzyńska-Długosz

Institute of Psychiatry and Neurology Warsaw, Poland

Management of spasticity with botulinum toxin/physiotherapy management

Dr Stephen Ashworth

Kings College, London, England

A vision for life after stroke

Vision assessment in stroke care services: the KROSS project

Professor Helle Falkenberg

University of South-Eastern Norway, Norway

What helps in coping with and self-management of sight loss after stroke

Dr Lauren Hepworth

University of Liverpool, England

Jeremy Johnston

Stroke Survivor, Northern Ireland

No decision about me without me – speaking together with one voice

Advocacy in action and effective communication: Role play session between an allied health professional and stroke survivor – a good conversation and a bad conversation

Advocacy in action and effective communication: Reflection with the audience - How we advocate for stroke including practical examples of navigation health issues and lived experiences