Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Saturday, October 6, 2012

Preparation for biking - saebo-flex

In preparation for another biking attempt I thought I'd see what the Saebo-flex might do for being able to get my left hand off the handlebar in a hurry.  Once again I found out why I hate it so much. It is absolutely not built for stroke survivors to get on by themselves. Velcro that sticks to itself is almost impossible to untangle one-handed.  Bead chains are stupid for survivors.  Even with the maximum spring it was not enough to pull the fingers straight. I know that I was never the candidate for this, they took the easy way out and recommend it for those who only have penumbra damage to finger flexors. But it was the only finger orthotic out there and I just told my doctor I wanted a prescription for it, and damn their requirements. My co-pay was only 10%

1 comment:

  1. Ditto. I cannot put it on myself, nor can my husband do it successfully. We had to pay for the whole thing. I used it religiously for 7 months before catching on that it was not doing anything for me. I wanted to be able to open my hand in order to row. :(

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