Deans' stroke musings: Need for greater access to stroke services, survivors and carers tell new study

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Monday, January 22, 2024

Need for greater access to stroke services, survivors and carers tell new study

NO, NO, NO! Survivors don't want just access you blithering idiots! They want recovery! DELIVER THAT!

If you're not actually going to solve stroke; get the hell out! Access is not solving stroke!

Need for greater access to stroke services, survivors and carers tell new study(Ireland)

Future developments to Irish stroke services must prioritise specialist community-based rehabilitation, ongoing support for life after stroke and better information and support for navigating services.

Those are the views of Irish stroke survivors, their family carers and healthcare professionals, gathered in newly published research.

In the study from RCSI’s School of Population Health, the need for improved staffing was emphasised, along with access to specialist acute care and support for mental health. Stroke survivors and carers also thought that there needed to be more attention paid to improving the speed of access to services for people with more unusual or atypical stroke symptoms.

Research lead Dr Eithne Sexton said: “These findings point to a need for stroke services that are more consistent nationally and better resourced based on an understanding of the diverse needs of stroke survivors and their families.

“We hope this study can contribute to the broader discussion on stroke care, informing policy and practice not only in Ireland but other countries with similar healthcare challenges.”

The researchers made a concerted effort to ensure that survivors with communication and cognitive difficulties were included in the study. Stroke survivors and carers related many positive experiences of stroke care through interviews, surveys and a stakeholder meeting.

However, significant difficulties in accessing needed services and supports were also revealed. These included problems accessing rehabilitation, home care hours, equipment to support stroke recovery, and support for mental health.

A major challenge identified by stroke survivors and their families was the difficulty of navigating the care system, compounded by inadequate communication and information dissemination.

‘Priorities for developing stroke care in Ireland from the perspectives of stroke survivors, family carers and professionals involved in stroke care: A mixed methods study.’ was carried out in collaboration with the Irish Heart Foundation and researchers from UCC and Beaumont Hospital. It was funded by the Health Research Board and published in the journal PLOS ONE.