Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Friday, May 23, 2025

Chronic Stroke Outcome Measures for Motor Function Intervention Trials

 The only outcome measure is 100% recovery! These 'experts' don't know what the fuck they are talking about!  I consider the Fugl-Meyer Assessment completely and totally worthless. NOTHING in that testing gets you recovered!

Using Fugl-Meyer for anything in stroke is the height of stupidity, nothing objective in it, so nothing is repeatable.

The only goal in stroke is 100% recovery; so that's what you measure you blithering idiots! Your degrees don't mean you have common sense!

Send me hate mail on this: oc1dean@gmail.com. I'll print your complete statement with your name and my response in my blog. Or are you afraid to engage with my stroke-addled mind? Your patients need an explanation of why you don't know about the only goal in stroke and the measurements needed to get there!

Chronic Stroke Outcome Measures for Motor Function Intervention Trials

Expert Panel Recommendations 
Cheryl Bushnell, MD, MHS; Janet Prvu Bettger, ScD; Kevin M. Cockroft, MD, MSc; Steven C. Cramer, MD, MMSc; Maria Orlando Edelen, PhD; Daniel Hanley, MD; Irene L. Katzan, MD, MS; Soeren Mattke, MD, DSc; Dawn M. Nilsen, EdD, OTR/L; Tepring Piquado, PhD; Elizabeth R. Skidmore, PhD, OTR/L; Kay Wing, PT, DPT, NCS, GCS; Gayane Yenokyan, MD, PhD, MHS, MPH, MPP 

Background

About half of survivors with stroke experience severe and significant long-term disability. The purpose of this article is to review the state of the science and to make recommendations for measuring patient-centric outcomes in interventions for motor improvement in the chronic stroke phase. Methods and 
Results

A 9-member expert panel reviewed evidence to identify measures of upper and lower extremity function used to date as outcomes in trials with patients who experienced a stroke 6 months before assessment. Outcome measures were screened using StrokEDGE consensus panel recommendations, and evaluated for availability of a published minimal clinically important difference. Measures meeting these criteria were further evaluated with regard to their level of measurement, psychometric properties, and ability of minimal clinically important difference to capture gains associated with improved function and clinical relevance to patients, to arrive at recommendations. A systematic literature review yielded 115 clinical trials of upper and lower extremity function in chronic stroke that used a total of 34 outcome measures. Seven of these had published minimal clinically important differences and were recommended or highly recommended by StrokEDGE. Those are the Fugl-Meyer Upper Extremity and Lower Extremity scales, Wolf Motor Function Test, Action Research Arm Test, Ten-Meter and Six-Minute Walk Tests, and the Stroke Impact Scale. All had evidence for their psychometric performance, although the strength of evidence for validity varied, especially in populations with chronic stroke Fugl-Meyer Upper and Lower Extremity scales showing the strongest evidence for validity. 

Conclusions

The panel recommends that the Fugl-Meyer Upper and Lower Extremity scales be used as primary outcomes in intervention trials targeting motor function in populations with chronic stroke. The other 6 measures are recommended as secondary outcomes. (Circ Cardiovasc Qual Outcomes. 2015;8:S163-S169. DOI: 10.1161/ CIRCOUTCOMES.115.002098.)

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