Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Thursday, April 17, 2014

Measuring Health-Related Quality Of Life (HRQOL) During Inpatient Stroke Rehabilitation

The solution to low scores would be to have much less dead and damaged neurons because your doctor has stopped the neuronal cascade of death.
http://www.neurology.org/content/82/10_Supplement/S21.002.short
  1. A. Barrett1
  1. Neurology vol. 82 no. 10 Supplement S21.002

Abstract

OBJECTIVE: We examine whether it is feasible to ask stroke survivors to estimate their own health-related quality of life (HRQOL), and change in HRQOL during acute inpatient rehabilitation. We compared self-assessment with clinician, third-party assessment. We also examined whether HRQOL changes were associated with changes in functional status.BACKGROUND: Functional status may not represent the impact ofstroke on a patient’s life. Studies have shown that stroke patients canappear functionally independent while still reporting major problems with return to work, engaging in leisure activities or with emotional adjustment. Determinants of HRQOL have been studied on stroke patients across the health-care continuum.DESIGN/METHODS:Independent HRQOL assessments with the Euro-Quol (EQ-5) were made by moderate stroke survivors and clinicians, and functional status scores were assigned by clinicians with the functional independence measure (FIM), at admission and discharge.RESULTS: 175 moderate stroke survivors were tested, with only 10.2% unable to complete the EQ-5 due to cognitive/ language impairments (e.g., delirium, aphasia). Patients and clinicians reported significant improvements on each EQ-5 domain during inpatient rehabilitation (p < .05). Moreover, patient and clinician ratings positively and significantly correlated in all EQ-5 domains: mobility (r = .31, p <.001), self-care (r = .21, p < .01), activities (r = .31, p <.001), pain/discomfort (r =.52, p < .001), and anxiety/depression (r = .57, p <.001). Significant cognitive and motor FIM improvements during rehabilitation did not correlate with any improvements on EQ-5 therapist ratings of patients' HRQOL.CONCLUSIONS: EQ-5 ratings converged between stroke survivors and clinicians, suggesting it is valid and reliable to measure moderate stroke survivor HRQOL in inpatient rehabilitation. EQ-5 and FIM improvement were poorly associated; HRQOL may independently complement functional outcome assessment in inpatient rehabilitation. Future studies could explore different areas of function to clarify the factor structure of improvement on these measures relative to HRQL.Study Supported by: NIH, Kessler Foundation

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