Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Wednesday, April 12, 2023

She boarded a cruise ship. Then she had a stroke.

 Even the American Stroke Association can't explain the cause of the stroke correctly. The dissection of the carotid artery even with 100% blockage wouldn't cause a stroke if the Circle of Willis is complete. Then the other three arteries feeding the Circle of Willis will supply enough blood. My carotid artery dissected but just threw a clot to my brain that caused the stroke. Three years later that artery completely closed up and I've had no problems with that artery being closed.

She boarded a cruise ship. Then she had a stroke.

By Jodi Helmer, American Heart Association News

Stroke survivor Shelley Davis. (Photo courtesy of Shelley Davis)
Stroke survivor Shelley Davis. (Photo courtesy of Shelley Davis)

Shelley Davis packed shorts, bathing suits and sunscreen for a weeklong cruise with her husband, Greg, and their 13- and 15-year-old daughters.

The morning before boarding the ship in Port Canaveral, Florida, the family from Mesa, Arizona, soaked up the sunshine and played in an arcade. When it came time to board the bus for the cruise terminal, Shelley had a headache. Once on board the ship, she headed straight to her stateroom for a nap.

"I took the girls out to look around the ship and when we went back to the room, Shelley was really ill," Greg said.

She joined her family on the main deck for a life jacket drill. Greg planned to find a nurse once the demonstration was complete. However, he noticed that when he asked her questions, she answered with only yes or no.

Sensing something was off, he asked, "Do you know what your name is?"

"Yes," she said.

"Tell me your name," Greg said.

Shelley just looked at him. He immediately went for help.

Shelley Davis (right) with her husband, Greg. (Photo courtesy of Shelley Davis)
Shelley Davis (right) with her husband, Greg. (Photo courtesy of Shelley Davis)

Shipboard medics took Shelley to the infirmary. An exam determined she needed advanced medical care. Fortunately, the ship was still docked. An ambulance was called and Shelley was transported to the nearest hospital.

By the time she reached the emergency room, the right side of her face was drooping and she couldn't move her right side. Even though Shelley worked as an occupational therapist helping stroke survivors during their recovery, the then-46-year-old never considered that she was having a stroke. Further examination revealed that the cause was a carotid artery dissection, when the layers of the carotid artery in the neck separate, and blood flow to the brain is compromised. Shelley had 100% blockage of blood flow.

She was airlifted to a nearby trauma hospital. Doctors gave her a 20% chance of survival.

"When we saw her in the hospital, the reality set in that this was a life-or-death situation," Greg said.

Shelley had emergency surgery to restore blood flow to her brain. The stroke was attributed to fibromuscular dysplasia, a rare disease that causes medium-sized arteries to narrow, blocking blood flow and possibly leading to aneurysms.

Instead of spending a week cruising between Caribbean islands and enjoying shipboard activities, Shelley was in the intensive care unit. But she knew she was lucky to be alive.

"I remember waking up and I could move my right arm slightly, and I knew that was a really good sign for recovery," she said. "I was so grateful that it happened when it did and not hours later when we were out to sea."

Surgery was just the first step in a long recovery process.

Shelley returned home to Arizona and received months of outpatient therapy. Even though she was able to regain strength in her right side, speech remained a challenge. She relied on her family to help her communicate.

"It was very frustrating when the phone would ring at home," she said. "I couldn't answer it because I couldn't communicate. Or when I had the strength to go grocery shopping, I couldn't go to the deli and tell them what I wanted. It motivated me to do another set of reps for speech exercises."

Shelley Davis with her daughters. From left: Meagan, Shelley and Justine. (Photo courtesy of Shelley Davis)
Shelley Davis with her daughters. From left: Meagan, Shelley and Justine. (Photo courtesy of Shelley Davis)

Three years after her stroke, which happened in 2015, Shelley returned to work, helping stroke survivors relearn how to do everyday activities. She tells them about her own experience to help motivate them.

"My patients get so frustrated because they want to be totally recovered as fast as possible, but I know from being in that situation that you have to take it a day at a time, a week at a time," she said. "Every year, I'm still progressing with speech and strength. It's nice to have that unique perspective of being a health care provider and a stroke survivor because I can empathize and show them that recovery is possible."

Stories From the Heart chronicles the inspiring journeys of heart disease and stroke survivors, caregivers and advocates.

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