Deans' stroke musings: Survey on Priorities for Stroke Rehabilitation Implementation - University of British Columbia, Stroke Recovery and Rehabilitation Roundtable

Changing stroke rehab and research worldwide now.Time is Brain! trillions and trillions of neurons that DIE each day because there are NO effective hyperacute therapies besides tPA(only 12% effective). I have 523 posts on hyperacute therapy, enough for researchers to spend decades proving them out. These are my personal ideas and blog on stroke rehabilitation and stroke research. Do not attempt any of these without checking with your medical provider. Unless you join me in agitating, when you need these therapies they won't be there.

What this blog is for:

My blog is not to help survivors recover, it is to have the 10 million yearly stroke survivors light fires underneath their doctors, stroke hospitals and stroke researchers to get stroke solved. 100% recovery. The stroke medical world is completely failing at that goal, they don't even have it as a goal. Shortly after getting out of the hospital and getting NO information on the process or protocols of stroke rehabilitation and recovery I started searching on the internet and found that no other survivor received useful information. This is an attempt to cover all stroke rehabilitation information that should be readily available to survivors so they can talk with informed knowledge to their medical staff. It lays out what needs to be done to get stroke survivors closer to 100% recovery. It's quite disgusting that this information is not available from every stroke association and doctors group.

Sunday, October 21, 2018

Survey on Priorities for Stroke Rehabilitation Implementation - University of British Columbia, Stroke Recovery and Rehabilitation Roundtable

I mentioned solving the neuronal cascade of death, 100% recovery and spasticity. Click on the arrow, bottom right to get to the survey.

Survey on Priorities for Stroke Rehabilitation Implementation

Online Survey
For People after Stroke and their Caregivers

Janice Eng, PhD PT/OT (Principal Investigator) & Marie-Louise Bird, PhD, PT (Co-investigator)
Department of Physical Therapy, University of BC, Rehab Research Lab, GF Strong Rehab Centre
E-mail: Janice.Eng@ubc.ca / Marie-Louise.Bird@ubc.ca; Phone: (604) 714-4108

You have been invited to complete this survey as you are a person living with stroke in the community OR a care giver who takes care of a person after stroke. We anticipate that the online survey will take 10-15 minutes of your time.

This survey is designed to learn about your thoughts and experiences with stroke rehabilitation offered to adults (18 years of age and over) in your local region. There are many rehabilitation treatments that are effective for people after stroke. However, not all of these are currently delivered or implemented in every region. This is often due to a lack of knowledge or resources.

Our team is seeking to gain an international agreement on the most important treatments or processes to improve the lives of people living with stroke. This will help health organizations to prioritize their resources and provide training to health care providers to deliver the best care. This group is led by Professor Janice Eng (University of British Columbia, Canada) and Professor Marion Walker (University of Nottingham, UK).

We would like to learn from you the following:
1.    What do you feel are the most important stroke-related health issues that people after stroke face?
2.    What treatments or therapies do you feel would be helpful for people living with these health issues?

Your answers and those collected from health care providers in a different survey will provide us a list of topics. It would be valuable if we could get your input again in a few weeks to help us prioritize these topics. If you agree for us to contact you one more time, please provide us your email contact at the end of the survey.

Your participation in this online survey is voluntary and you can withdraw at any time without penalty. You do not have to answer any questions you are not comfortable answering.

Your responses will remain anonymous.

By completing this survey you have consented for us to use your survey data. If you would like to receive a summary of results, please provide your email at the end of the survey.

There is an online draw and we will provide a $25 Amazon (or similar) gift card to ten randomly selected people who have completed the survey. If you would like to participate in the draw, please provide your email at the end of survey.

If you provide your email details, these will not be linked to any other data that your provide in the online survey. Only the researchers (Drs. Janice Eng & Marie-Louise Bird) have access to the data collected from the online survey.

If you have any concerns or complaints about your rights as a research participant and/or your experiences while participating in this study, contact the Research Participant Complaint Line in the UBC Office of Research Ethics at 604-822-8598 or if long distance e-mail RSIL@ors.ubc.ca or call toll free 1-877-822-8598.